Restless Body Syndrome
Enidah in Parkinson's Movement3 years ago
I've had two nights of what I think of as Restless body syndrome. I fall asleep reading but as soon as I turn out the light and try to get c...
Marco6505 in Headwaya year ago
Hey guys, I have another question today.
I have many friends that suffer from Anxiety including my best friend. My best friend suffers from A...
Something on Cancer and Stem Cells
Hidden in Advanced Prostate Cancer2 years ago
Here is a guy (from the NIH, Snuffy's old place) talking about Stem Cells in the context of (the cause of) cancer.
Personal Devices to Monitor Parkinson's Symptoms
FMundo in Parkinson's Movement2 years ago
I would like to know the extent to which PwPs are wearing devices to record tremors. Its not been mentioned here . . .
I participated in a ...
10 things I wish I'd known
Dandelion_1 in Hep C Positive2 years ago
These are ten things I wish I'd known when I was first diagnosed with Hep C:
I wish I'd known not to panic
I wish I'd known that I could live ...
Real World Uptake, Safety Profile and Outcomes of Docetaxel in Newly Diagnosed Metastatic Prostate Cancer.
pjoshea13 in Advanced Prostate Cancer2 years ago
New UK study below.
Perhaps the most useful finding is that:
\"The risk of febrile neutropenia was nine times greater if chemotherapy was star...
tiffany1979 in Anxiety Support2 years ago
So my doctor has me on zanax but I can only take it at night because it makes me just sleep which is ok because it helps me actually sleep b...
2 years since robotic radical prostectomy. Dr Lowe portland or. Constant battle with incontinence. Until now!.
Costarica1961 in Advanced Prostate Cancera year ago
I have dealt with nightly incontinence despite oxybitnin and flomax. I have conducted a very interesting experiment with my cpap machine, wh...
jan61 in Thyroid UKa year ago
Good morning all. Long time since I last posted. I'm in a battle to keep hold of my T3 that I have been taking 60 mg of for the last 6 years...
IMAGING TO STAGE
steinmother in Prostate Cancer Network2 years ago
Finished 44 treatments over 78 days. Hormone Lupron and Casodex. Gleason 6/7 with lymph node found on 3 tesla MRI. CT guided biopsy of node ...
DNA Repair/ Cockayne Syndrome and Niagen.
sunvox in Ataxia UK2 years ago
I knew that nicotinamide riboside was headed for a human clinical trial in Cockayne Syndrome, but I never found any underlying animal model ...
Back to Chemo
sweetudog in Advanced Prostate Cancer2 years ago
Hi All -- it has been awhile since I have posted an update. My husband Doug has Stage 4 MCRPC with mets to bones and small cell to liver. ...
Mom of a teenager warrior❣️
Lilmama in Melanoma Caregivers2 years ago
My 13yr old daughter , Sky, was diagnosed stage 3a Nodular Melanoma October 12th 2016. She has had 2 surgeries and currently has 8 months le...
Papapickle in Behçet's UKa year ago
Today I to9 the brave step of speaking to a counsellor to try and come to terms with my Behçets and how it’s effecting my life, along with t...
Living with ovarian cancer
Roxygh1989 in My Ovacomea year ago
Hi I was diagnosed in Sept 2013 with ovarian cancer. I almost made a 5 year remission when it became recurrent. Has anyone got feedback on a...
Incisions Hernia and Travel
dryden1 in My Ovacomea year ago
Hi All, I don,t often post here but read the posts regularly and respond when I feel I have something to say. Just a quick potted history I ...
Neona in My Ovacomea year ago
Has anyone had severe upper back pain radiating around the ribs a few days after having a blood transfusion? Also unexplained chills-tempera...
Ibrutinib and antibiotics
Mayor44 in CLL Support Association2 years ago
If I get an infection and need to take antibiotics, must I first go off Ibrutinib? Are there any antibiotics that can be taken at the same t...
treetate in Headwaya year ago
We had a review meeting with the clinical staff as kev has been at the rehabilitation centre for 3 weeks now. They are concerned about his m...
Simon96 in MPN Voicea year ago
Hi All, had another haematology visit this week, three months have flown by. At my last visit my haemoglobin level was 88g/L and now it is ...
Bluemoon46 in SHARE Metastatic Breast Cancer 5 months ago
Is anybody taking this for advanced breast cancer.
Starting olaparib parp inhibitor in month. Anyone else taking this.
Beachperson in SHARE Ovarian Cancer Support6 months ago
Just finished with month eighth of carbo and doxil. Second cycle of chemo after coming out of remission last July. Stage 4 diagnosed nov 201...
Oral cyanocobalamin and test results
Breq42 in Pernicious Anaemia Society4 months ago
Hi all--new person (UK-based) here and I'm a bit flustered at the moment. Apologies for the long post.
For background: I'm in my mid-30s and ...
Scan back moved to lymph nodes
RIckW in Advanced Prostate Cancer10 months ago
I had the Auxumin PET this week and it showed cancer in my lymph nodes in the groin area and lower back. I guess that is better than Mets o...
On reading the following T3 shouldn't have been withdrawn
shaws in Thyroid UK10 months ago
Just came across the following link:-
excerpt and it is dated 30 November 2017
\"NHS England received around 5,...
Minnow59 in SHARE Ovarian Cancer Support7 months ago
I am stage 3c survivor
My ca125 has been really low since chemo and surgery 2016
Just had check
Up Tuesday and it’s gone up to 80
I’ve also bee...
Another blood test
campy67 in Thyroid UK8 months ago
Hi i had a thyroid test 3 months ago it came back as raised cannot remember which one My Doctor said have another which i did this month it ...
Industrial Strength BIRM - 3rd Day and feeling increased energy
HOPEFULSPOUSE in Advanced Prostate Cancer10 months ago
My husband started the industrial strength BIRM (thank you Nalakrats for sharing the info). Third day of 3 ml 2X and he has noticeably more...
Advice needed, please!
Mrsd12f in Thyroid UK8 months ago
Hi ! I'm new, here, and have just had a TSH result of 5.1, which emerged when I was actually querying a B12 deficiency. GP/lab suggest anoth...
Is Finesteride an ADT? Should I stop it?
GranPaSmurf in Advanced Prostate Cancer2 months ago
I've been on finesteride for years. Is anyone else on Lupron and finesteride both? I'm told it depresses the PSA by half. I don't think that...
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