Arianna CHF

[clark1978]

Our daughter Arianna, who is six, Has CHF. We are in the process of setting up living donor arrangements. We are struggling and do not know what kind of resources there are out there. Does anyone have any helpful information? You can also check out her facebook page:(Izzys page). It has a picture of her. thanks to all.

[picklemum]

Hi,

Have you been in contact with the family support officer with CLDF? His name is David Bayliss and can be contacted on [e-mail]. He may be able to point you in the direction of more help.

My 3 year old daughter Isobel has CHF but apart from needing medication and having regular banding for varices is doing well.

We'll be thinking of you all, good luck

Alexia

[clark1978]

No we have not. Thank you for the information. I wish you and daughter our best and we will keep her in our prayers.

Clark

[picklemum]

Keep us updated with how you all get on. Its such a worrying time for you all, I hope you can find the support you need.

Alexia