Our daughter Arianna, who is six, Has CHF. We are in the process of setting up living donor arrangements. We are struggling and do not know what kind of resources there are out there. Does anyone have any helpful information? You can also check out her facebook page:(Izzys page). It has a picture of her. thanks to all.
Arianna CHF: Our daughter Arianna, who... - Children's Liver ...
Arianna CHF
Written by
clark1978
To view profiles and participate in discussions please or .
3 Replies
•
Hi,
Have you been in contact with the family support officer with CLDF? His name is David Bayliss and can be contacted on fso@childliverdisease.org. He may be able to point you in the direction of more help.
My 3 year old daughter Isobel has CHF but apart from needing medication and having regular banding for varices is doing well.
We'll be thinking of you all, good luck
Alexia
No we have not. Thank you for the information. I wish you and daughter our best and we will keep her in our prayers.
Clark
Keep us updated with how you all get on. Its such a worrying time for you all, I hope you can find the support you need.
Alexia
Not what you're looking for?
You may also like...
Transplant Waiting List
My daughter was diagnosed with BA in January, She underwent the Kasai procedure in Birmingham, but...
Anybody Had Problems Weaning BA Kids Off Phenobarbital???
Sophie is 13 months old and had her Kasai aged 7 weeks. She is doing really well and we are...
Vitamin E injection
My daughter is nearly 3 and has PFIC 2. She has been taking vitamin E suppliments since she was...
Neonatal Hepatitis
Hello. My daughter was born 08/01/2017. In the last two weeks we have found out she has liver...
Elevated ALT - 2 months post kasai
Hi all,
My daughter has biliary atresia. Kasai done when she's 4 weeks old. Bilirubin went down...
Biliary Atresia- Kasai
Bad colour poop . 
Specialist kids liver units around the world 
1 week passed after kasai
Hello
