Can anyone tell me please what options were available in 1970

[joncee18]

My daughter had a liver transplant in 1970,having been born with BA.She died a day later.Can anyone please tell me if Kasai or live donor was an option then.

Her transplant was at Addenbrooks Hospital,Cambridge,performed by Mr Caine.

[natalie24xxxx]

Aww I am sori to hear this.. awful! Hope you are ok.. can't really answer question only now getting use to it all with my little boy he has alpha 1 . Did they explain this to u ? When was she born x

[joncee18 in reply to natalie24xxxx]

Thank you or your reply.I have answered below.Good luck with your child.

[McSousa]

That's so sad to hear. I just can't imagine how you must feel. I've read that the Kasai operation was performed in Japan from the mid-fifties but without a good success rate. It was gradually improved and used in European countries from the late seventies. Living donors have been used since the late eighties, I believe. My little boy has BA, is on the transplant list and if he doesn't get called in soon I'm going to be his living donor in a few weeks.

[joncee18 in reply to McSousa]

Thank you very much for your reply and information.At the time you blame yourself for not doing enough.I just had to check out if other options were available.We had no internet then ,or this great website.I just asked for a second opinion ,after her hometown hospital gave up on her.I was very lucky, and got her a liver transplant after being transfered to Sheffield Childrens Hospital.Transplants were almost unheard of ,and we were sworn to secrecy.Times have changed and thankfully improved for BA babies,not fully but more hope..All the very best to you, and all the people on this site.

I am 70 this year, and doing a 10K in London in July.Got the CLDF T shirt !!!

[McSousa in reply to joncee18]

Such a sad loss, but you did do everything you could have at the time. Every day I'm thankful that my little boy was born in an age and a country where he has every chance of living a long, happy and fulfilled life despite being born with BA. Having the internet and these fabulous groups is so helpful.

Fantastic that you're doing a 10k and, even better, in your CLDF T shirt!

[joncee18 in reply to McSousa]

Thank you very much,and that makes me feel a whole lot better.I am sure the medical team would have told us if there were options,but looks like it was all in its infancy.All the very best,and I hope all turns out well for your family.

[jonesfch1]

Hi. Truly sorry about your daughter. I know kasai started in the late fifties (if my memory serves me right from all the info I was given) when my daughter had the kasai last year! Again as per the above comments it was in Japan and did not reach the UK for quite sometime.

[joncee18 in reply to jonesfch1]

Thank you very much for your reply.I have added my comments above.All the very best ,and I hope all works out well.