hi my 14 year old son has PSC n colit... - Children's Liver ...
hi my 14 year old son has PSC n colitius i would like to talk to anyone else who has the same diagnosis plz
my 13 years old daughter is diagnostic with PSC and Cronh's disease, instead colitis... is hard condition, she born with CHARGE syndrome, and fours year ago everything change for worst, and the real worst is no here yet. Hard condition to treat.
Hi my daughter has AIH,PSC and ulcerated colitis she is now 20 but was diagnosed at 12 it's been a roller coaster of a ride with us and still is but it's not that way with everyone Jade is treated at Leeds . Happy to chat or answer any questions if I can help Jades on azathioprine , prednisolone , tacrolimus , urso and then various vitamins and a low dose of cypro as she gets various frequent infections.
Charge is a COMPLETE syndrome. CHARGE is acronym, each letter is something. Good luck to you too, is hard situation, this is the world of the busy an extremely hard possibles.
I thought my whole world had fell apart when connor (he was 12 then ) got ill he was always small for his age but seemed happy n healthy then after a wonderful hols in usa in july with his dad in sept just as he started his gcse,s he got diahorrea n he just got worse n worse so back n forth to local docs they done blood tests etc eventually after 2 months n he has lost about 20lbs in weight we got an appointment at addenbrookes hosp in cambridge n the doc thought h had crohns so booked him in for a endoscopy n colonscopy n then we got the news he had liver disease he was put on a hugh cocktail of pred , pentasa ,urso ,n calicum tabs,so then he gained about 30lbs in five weeks ,,, his schooling has suffered as he hardly went,,and when he did go he got bullied ,, but now he is on line schooling ,he doesn;t socialize ,he doesn;t want to go out with friends we go for regular appointments at addy hosp n he is growing in height and his weight stabilized ,,,hope jade is keeping well ,,and hope u don;t mind me writing to you ,
