Itching

[Lilybug]

Since I’ve had the steroids my liver has been getting better I’m really pleased with the steroids also still no pain, still finding this amazing.

The only problem I have is this constant need to itch my body mainly legs and bum I can’t stop scratching myself. Years ago when this happened

I tried antihistamines, and some funny looking medicine looked like iron filings, the dr prescribed both but nothing worked and the itching eventually stopped.

Is there anything that works?

Would be most grateful for any suggestions ?

Many thanks

[jojokarak]

I was prescribed questran powder you could ask your GP if it's suitable for you... If not I also used to use a cooling spray what you can buy from boots for in the summer and that just cooled my skin down x

[Hidden in reply to jojokarak]

Hi

My Dr prescribed fexofenadine 180 mg which had helped me tremendously. Love and hugs Lynne xxxx

[Lilybug in reply to Hidden]

Thankyou were you on steroids ? Did the fexofenadine get rid of all the itching ?

[Lilybug in reply to jojokarak]

Thankyou I’m going to the drs just not coping with the itching

Did the itching stop and were you on steroids?

[jojokarak in reply to Lilybug]

I wasn't on steroids pre transplant but on them for life now post and I haven't had any issues with itching whilst on them .... It was my liver causing the itching x

[Lilybug in reply to jojokarak]

Thankyou

The itching is sending me mad it’s worse at night it keeps me awake

[jojokarak in reply to Lilybug]

Always was worst at night for me as well I was putting everything damp on me until I went GP and then I had some itching post due to rejection and I found that cooling spray it was a lifesaver x

[Hidden in reply to jojokarak]

Hi

Hoe are you this morning? I wasn't on steroids and yes tabs took away all the itching. Love and hugs Lynne xxxx

[Lilybug in reply to Hidden]

I am coping during the day it’s at night

I can’t get an appointment at the drs to see if he will prescribe something

I’ve taken 1 anti hystimin tablet hoping it might just take the edge of it

Thankyou

[Hidden in reply to Lilybug]

Hi

Hope your itching eases

If I want a same day appointment I go down to my drs for 8 , they then find me an appointment. Love and hugs Lynne xxxx

[Lilybug in reply to Hidden]

Thankyou

[alfredthegreat in reply to Lilybug]

Hi. Lilybug. I don't know if this will be of any help to you but before my transplant I used to get that annoying itching in bed at night. You are normally at your warmest under the covers when it starts. If the weather wasn't too cold I would sleep with just a sheet over the most part of me as this would lower my body temp and lessen or even stop the itching. On really cold nights I would have the quilt pulled up but stick one leg out of the covers (that also helped lower my body temp and lessen the itching) and after a while turn over and stick the other leg out. It worked for me quite a lot of the time and worth a try. All the best. Alf

[Lilybug in reply to alfredthegreat]

Thankyou

Last time when my liver was at it’s worse nothing worked it was awful I did something similar

I made my bed on the floor in the living room, it had to be clean cold sheets, not a spec of fluff was allowed on the sheets, couldn’t stand to be touched by anyone, my poor husband and my children didn’t really understand, I did go slightly mad, but they can laugh about it now, nothing worked so I had to wait for my liver to improve it did thank god.

I took one antihistamine last night it eased the itching, so I’m trying the same tonight fingers crossed

Thankyou everyone it’s nice to be supported