itching!!!

[Liverfearlacey]

Hi all sorry another post for help/advice…

So I posted for first time last week and received great help and others experiences!

but since then my Gastro consultant fully confirmed fibrosis sage 2 and is planning a biopsy as he said needs to find the cause but he seems to brush off my itching!!!!

There is no rash and I feel like I’m going mad, it can wake me in the night, I’ve made my hands/arms and feet bleed and nothing works got a tablet and menthol cream but I don’t understand how he keeps saying it’s caused my something different.

I have fibrosis stage 2, bile acids malabsorption and high blood pressure and no skin allergies.

My eyes are glowing a lovely shade of yellow (have done on and off for 3 years) but the past week to ten days more so. My weight is dropping and I feel totally crap and the consultant is lovely and promises to help me feel better but seems to ignore the itching and if I’m honest that’s the worst but for me right now.

sorry to sound silly when others are suffering more but i feel so fed up and alone

[AyrshireK]

It's the build up of bilirubin that causes itching (pruritis) in liver disease - there are frequent posts about itching and what can be done about it. Some folks are prescribed antihistimines like fexofenadine, some folks get prescribed Ursodeoxycholic acid (Urso) which is a treatment commonly used for those with Primary Biliary Choloangitis.

Cold baths, showers, cotton breathable clothing, menthol creams, E45 cream often come up as suggestions.

Nothing really works unless the bilirubin levels come down.

It's important to try and not scratch as breaking the skins surface can lead to infection thereby opening up a whole can of other worms.

Hope you get some relief from it soon.

Katie

[Liverfearlacey in reply to AyrshireK]

thank u so much. I have meds and I use a menthol cream but it’s driving me crazy!!!!

Has anyone had a biopsy after a fibrosis scan and received different staging at all?

My Gp called and confirmed my itching is 100% due to liver so at least I know it’s not in my head.

I’m so tired and emotional did anyone else feel like this at first after being diagnosed?

Thanks and love

[Qwertrew in reply to AyrshireK]

Good Points, but the medical community is largely unsure what causes pruritis in liver disease. The most common factor appears to be bile salts. Bilirubin was at one point regarded as primary reason, but recent evidence refuted this as the main cause. medicalnewstoday.com/articl...

[jackk9]

cholestramine powders are brilliant for itching my husband had them because it was driving him insane the itching and they do work ask for them we had them eventually after begging for them had to wait till he was diagnosed as once first but the itching stopped as soon as he took them

[Livaa]

you aren’t losing your mind, I go through periods of itching so bad I want to cry, too. I live in the USA and my dr prescribed hydro ozone chlorine. I took it about three days several months ago and it helped break the cycle of itching. I’ve e had to take only 3 or 4 since. My dr said the itching is pretty common. Best of luck to you.

[Livaa]

ps. I feel very alone often,too.