My Story: I woke up on May 10, 2009, and went to pee... - BASHH

BASHH

21,288 members3,041 posts

My Story

maybesheila profile image
0 Replies

I woke up on May 10, 2009, and went to pee like I do every morning. I had blood in my urine and got so scared. My stomach had been the size of a pregnant woman in her 9th month all of April. My HPV Test doctor didn't know what was wrong after the CA125 blood tests, and other exams were to see if I was having internal bleeding because I was taking blood thinners due to blood clots in my lungs and one in my right leg. Later that morning, on the 10th, I would get an ultrasound done

I looked in the mirror, which was as white as a sheet.

And I said a prayer, brushed my teeth, washed up, and dressed quickly. I drove to my grandmother's house, shaking and praying. I made it there in about 8 minutes. She lives about 15 to 20 minutes away. I got up the stairs and rang the bell. So I told her to call an ambulance when she answered the door.

I had to get to the hospital, and there was blood in my urine. I sat nervous and waiting, trying to stay calm because I had panic attacks. The EMT HPV Team came and took me to the hospital for tests. I peed again, and the urine was the colour of cranberry juice. The nurse said I could have a urinary tract infection. I waited in the room with my mother, grandmother and aunt. The doctor came in, got my history, and told me they would do a CT scan. Another nurse appeared and told me to drink this fluid for the Lab report. I took the test. Then waited. The doctor came back in and told me I had ovarian-level cancer. I screamed. Cried my eyes out.

Moving forward

They released me after I had an HPV home Check and I went home to my grandmother's. I couldn't sleep and was so uncomfortable and scared. I went to my doctor the next afternoon. That evening, I was admitted to the hospital. I met my Oncologist. She told me I had Ovarian Organ Cancer stage 4 and ascites. She also told me there was too much disease to do surgery. I had more CA125 Ovarian Fertility Cancer tests done. There were tumours in both ovaries, on my abdominal wall, one in my liver, one on my spine, and a bunch in my omentum.

The next morning, I got my stomach tapped. They took 6 litres of fluid off. I had to have a blood transfusion because my haemoglobin was at 7. I had chemo after that. Had an allergic to the chemo, so they stopped it. The next morning, I met with my doctor. She changed the chemo drugs, and I had the chemo the next day. I got my stomach tapped one more time. They took 6 litres that time also.

I was released after being in the hospital for 10 days. When I got home, I had an HPV DNA Sample check, and my son put me on an alkaline diet. No meat, dairy or grains. Fruits and Vegetables only. I had my stomach tapped the week after I got home. They took 4 liters that time. And that was the last time I had to have it tapped. I got chemo again 21 days after the first time. I was on a 21-day cycle and found out my tumour marker was 16,000.

Final message

When I had the CA125 Level checkup again a month later, it was 13,000. I started taking alkaline supplements and an immune booster to avoid catching a cold or the flu and was going crazy, eating only fruits and veggies. I continued chemo, but it was ravishing my body. They had to give me another blood transfusion, a platelet transfusion, and an iron transfusion, as well as shots to build my blood levels. My CA125 went down to 734 after my 3rd cycle.

They finally reduced my chemo dose. I was put on a weekly cycle. My tumour marker continued to drop to 37, then to 26. I had two weeks to go, but the chemo was still too strong. I had my last treatment at the end of October. My levels were too low to continue. In December 2009, I had my second PET scan. No cancer anywhere and no HPV Virus either. I just went to the doctor yesterday, February 10, 2010. My CA 125 is 18. I am in remission and don't want the surgery. I will continue to take these alkaline supplements and feel like they are the reason the cancer is too small to be detected.

I have been testing with Medicines Online. They’ve been absolutely fantastic!

Their lab offers a home test kit that is incredibly easy to use, and they deliver results within just one day. On top of that, their customer support is exceptional—they’ve been quick to respond and super helpful whenever I’ve needed assistance. You can find their test here: medicinesonline.org.uk/prod...

And you can also find the HPV test here: medicinesonline.org.uk/prod...

Written by
maybesheila profile image
maybesheila
To view profiles and participate in discussions please or .
Read more about...

Not what you're looking for?

You may also like...

HIV SCARE

HIV scare, Hey guys,I’m having an hiv scare! So basically a few months ago,I slept with an...
Tmarecha1 profile image

Just Help..anyone....

I recently found out I have herpes type 2. I also have HPV and slightly abnormal cells in my...

HIV anxiety

I’m still freaking out that I’m not okay. I was tested for HIV again at 19 weeks and it was...
mattvrrt profile image

Genital herpes

Hi, I've just been diagnosed with genital herpes and don't know exactly what to do. The doctor gave...
mandda profile image

Ongoing thrush problem (I think?) not responding to anti-fungal treatment anymore

Last summer, I developed a white thicker discharge than normal that looked like it had little white...
smith2000 profile image

Moderation team

kerryblue profile image
kerryblueAdministrator
BASHH1 profile image
BASHH1Partner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.