Results of biopsy from my last op. (Cystoscopy)

[Ern007]

I got a telephone call Friday morning from my oncology. urology nurse. With results of (Cystoscopy) and biopsies.

She said no new tumors but I still have CIS which is a cancer than can spread, to other parts of my body also. This was confirmed by the biopsies.

It's G2 High Grade,

I thought hear we go wanting me to have a bladder removal and associated organs. {Cystectomy)

Instead they are giving me another round of BCT Treatment, but three infusions this time, then a Cystoscopy and biopsy again.

I have had Bladder Cancer since 2020 - and after my fir FLEXIBLE Cystoscopy which diagnosed - I have no changed for better or as far as I can tell worse.

I had no official follow up this time, just a call from the nurse,

If this is new and I will be getting BSG and or Chemo - I will be pleased as I think being I have survived so long, a Cystoscopy should only be considered when - There are no other options.

It's as it goes, I am happy to be having BSG again,

Thank you all for kind support I have recieved

[sassy59]

It’s like living on a knife edge Ern but you’re doing really well and I hope you continue to do just that. Keeping you in my thoughts. Xxx🩷

[Ern007 in reply to sassy59]

It is like "living on a knifes edge" Carole. The times they have been positive and then brought me down. I think my GP and my Oncology nurse seems to thing an 8 hour operation is not for me. I am happy to have this BSG but surprised, they said the last one was that, the last.

Thank you Carole - Your support over the time has been appreciated and I am rooting for you.. xx

[sassy59 in reply to Ern007]

I’m rooting for you too Ern xx😘

[Ern007 in reply to sassy59]

I never doubted that carole.😘

[Oshgosh in reply to Ern007]

I’m thinking of you.

It’s good you got a phone call,

[Ern007 in reply to Oshgosh]

Yep, things are moving this time.

[Katinka46]

You are obviously very knowledgeable about your condition. And have an admirable, pragmatic attitude and positivity. Well done. Looking forward to your next picture. Xxx 🧑🏻‍🎨

[Ern007 in reply to Katinka46]

Thank you will be soon.

[Bingo88]

Hope everything goes well for you and the treatment works. Brian

[Ern007 in reply to Bingo88]

Thank you Brian, This treatment was unexpected, I am glad though

[CDPO16]

You seem to have your head round it all Ern and I'm pleased for you. Wishing you ongoing strength as you face the next round of treatment xx

[Ern007 in reply to CDPO16]

Thank you - At my age I need to know I am getting appropriate treatment, it matters to me. This was not expected, I am hoping they have developed lateral thinking x

[CDPO16 in reply to Ern007]

Taking the liberty of sending you a hug xx

[Ern007 in reply to CDPO16]

Thank you and one sent to you x

[CDPO16 in reply to Ern007]

Most welcome Ern xx

[Nula2]

Hope all goes well 🤞. Keep us posted. I will look at your fantasy art and send you positive thoughts 🙂xxx

[Ern007 in reply to Nula2]

Thank you - I will be posting a pic soon, either fantasy or a spring platter of wild flowers.

[Izb1]

So good that you are keeping positive Ern. I hope that all goes well with this next round of treatment and will be thinking of you x

[Ern007 in reply to Izb1]

Thank you, I am trying to remain positive - I think I have to..

[katieoxo60]

Hi Ern007, I understand what you are saying and thank you for details about new ways of dealing with it. I have a freind who chose to have what they call a bladder scrape sounds like what you are describing some years ago. they are still with us and still have their own bladder. Hope this gives you a bit more confidence in the treatment offered. It may cause you a bit of suffering when its done but some cancers do return even after treatment sadly. All I can say is try to think positively, I have just had a return of cancer, and waiting to see a specialist . In your case would a Macmillan counsellor help if you are feeling stressed from coping with it. I wish you every best wish for as best a outcome as possible. The treatment can sometimes be more gruelling , than the illness. Pamper yourself it may distract your mind . Will keep you in my thoughts. cry or scream if you need to to release the tension. xx

[Ern007 in reply to katieoxo60]

Thank you. I think you was talking about an op called a TURBT ( trans urethral resection of bladder tumor.) they enter your bladder and remove any tumor. I had one 2 years ago. I was just a 24 hour stay, I have had 4 (Cystoscopy) which is like a TURBT but without the drastic bit. If they see anything they just zap it Cystoscopy is also done for taking biopsies - Home same day 99% of the time. I have a dedicated Macmillan nurse who gives the treatment, BCG is given with a catheter directly into the badder, buy I have her mobile number if I need her,

I wish you well with your cancer return -but I hope being it's a return it will be very early.

Thank you for you kind post and I wish you well. x

[katieoxo60 in reply to Ern007]

You are very welcome, thank you for explaining the proceedure for bladder. Best Wishes

[watergazer]

Thank you for the update. Sending you hugs. Hope all goes well. X🤗🤗

[Ern007 in reply to watergazer]

Thank you for your kind post x

[Coolcat6103]

You're a smart man Ern, love n best wishes Emma

[Ern007 in reply to Coolcat6103]

Thank you Emma - I think with cancer you listen but also, at times you have to listen to yourself.. Take care x

[Alberta56]

Best wishes. It's good that they have decided the less drastic form of treatment is suitable.