My Flexible Cystoscopy - and update.

[Ern007]

I went for my flexible cystoscopy this morning. I was seen pretty quick and the doctors and nurses very sensative.

The cystoscopy took less that 15 minutes and unfortunately they found a start of a tumor.

I was watching on a screen and it really did not look much, but I have to be admited to have it removed,

The waiting list I believe is 6 to 8 weeks.

Bladder cancer tumours have a habit of returning, this was not unexpected.

The plan is to remove the small tumour and do a biopsy of the site and I will then start a new course of BCG.

Options are GA/ Spinal and a small possiblility of a local. depending on what the MDT think. I am not allowed a GA, so I can cross that off. That is the latest in a nutshell.

[helenlw7]

How disappointing to find another tumour in your bladder. It’s good that it’s only small and the waiting time isn’t too long.

I can’t have an epidural because I have spinal stenosis, and GA is difficult because my airway isn’t straight - I have RA in my neck, so getting the tube down my throat is interesting!

[Donald_1931 in reply to helenlw7]

Pity that Ern, you could have done without that. Hope they get on with it quickly.

[Ern007 in reply to Donald_1931]

Thank you Donald - 6-2 eight weeks, but tumour not advanced,

[Ern007 in reply to helenlw7]

Thank you Helen - It is disappointing, but Bladder Cancer is known to reoccur - It's a start of a tumour and can be dealt with, I have scoliosis. in my spine , This could be a problem with a spinal, they have struggled to get in. through the discs.

If the decide to zap with Lazor - a local maybe can be used, if not - I don't know, they have not wanted to give me a GA in the past. We shall see,

[Alberta56 in reply to Ern007]

Fingers crossed for you. xxx

[Ern007 in reply to Alberta56]

Thank you Chris xxx

[djbctla]

Hi Ern,

Thry have got it in time and it will b removed, thank God for that. The biopsy will confirm the treatment plan is right for you. I wish you the very best outcome.

Take care BERNARDINE 🥰🥰

[Ern007 in reply to djbctla]

Thank you Bernadine - if it is LG, I will be back on BCG which after a dissapointing start, worked just fine.

[sassy59]

Unexpected or not Ern that’s so very disappointing after all you’ve been through so far. I really hope you are seen soon and have a successful tumour removal. Glad it’s a small one.

Sending hugs and lots of positivity your way. Thinking of you. Xxx❤️🙏🏻🤗

[Ern007 in reply to sassy59]

Thank you Carol. I knew there was a chance it would return. but remembering the dark days. this time caught early and BCG I will get will I hope keep the grade down. The surgion and nurses really nice, they treat Anne and me well. I am optimistic it will turn out OK xxx

[sassy59 in reply to Ern007]

👍❤️❣️🥰 xxxx

[tomc]

Sorry to hear this Ern. hope all goes well for you.

[Ern007 in reply to tomc]

Thank you tomc - At least it's caught early.

[leo60]

That's a b****r Ern. Glad they've found it early and that it will be dealt with soon. Not what you need on top of it all, but all the best, Laurie xx

[Ern007 in reply to leo60]

Thank you Laurie - Yes a dissapointment after clear last time,but at least caught early xx

[leo60 in reply to Ern007]

Good luck 😘 xx

[Ern007 in reply to leo60]

Thank you Laurie xx

[Nula2]

Ah Ern not what you wanted to hear (nor did any of us for that matter) but glad they've caught it early and here's hoping they fit you in before the 6 to 8 weeks🤞🤞. Thinking of you. Take care my friend ❤️❤️

[Ern007 in reply to Nula2]

Thank you Nula - I waa 50/50 whether I would be clear or not, Bladder Cancer has a sneaky habbit of coming back - I hope I get in that time-frame. I would like it all done before Christmas. I don't mind the BCG treatment, just once a week. xx

[Nula2 in reply to Ern007]

🤞🤞❤️xxx

[Patk1]

I hope they can soon remove it so u know what Yr dealing with x

[Ern007 in reply to Patk1]

Thank you Pat - I expect between 6 and 8 weeks. sooner would be good. x

[Patk1 in reply to Ern007]

I hope its sooner 4u.gd that u have these cystoscopies to catch things early xx

[Ern007 in reply to Patk1]

Thank's Pat, Yes they find the problems, then a Cystoscopy fixes the problems, I will be having one soon I hope. xx

[Issy22]

Ern Iam so sorry to hear they have found a tumour. Thankfully they found it early. Hopefully they will remove it as soon as possible. Try and keep positive. Look at it as another challenge in life, you have had your fair share lately and you will get through this one as well. Wishing you well and I will be thinking of you during this difficult time. Best wishes Ern ❤️ issy x

[Ern007 in reply to Issy22]

Thank you Issy. It was half expected issy, Bladder Cancer does sneak extra tumours in. They tell me it's early. and will have it removed within 6 to 8 weeks, could be earlier, that depends on the MDT. I will stay possitive asthat's the only way to beat this pest. I am optimistic Issy, it did go from high to low grade with BCG and I will be going back on BCG again they tell me, after this tumour is removed. Again thank you for your kind wishes xxx

[Issy22]

6-8 weeks will fly by, even better if they can do it earlier. You seem to have a good network of doctors and you will be in good hands. xx

[HungryHufflepuff]

I’m so sorry to hear this. Thankfully it was caught early and you haven’t got to wait a stupidly long time to get it seen to. Wishing you well and thinking of you and Anne. 🐑🐑🐑🐑🐑

[Ern007 in reply to HungryHufflepuff]

Thank you for your good wishes HH - Bladder Cancer tumoursoften come back - That does not mean they will be maignant, I am hoping the fact I went from High Grade to Low Grade after third lot of BCG Treatments, will help define what this start of a tumour will be - I also being given another course of BCG when they have Zapped or removed this.They have caught it early HH soI am lucky in that respect.

The treatment I got at hospital today was first class, really put me and Anne at ease, and they let Anne stay until I went in the room.

[Snowdrops_17]

Dear Ern, you are definitely in my prayers 🫂🙏🩵

[Ern007 in reply to Snowdrops_17]

Thank you Snowdrops_17 , I appreciate that

[Snowdrops_17 in reply to Ern007]

Try to sleep Ern okay 🩵🙏🫂😴

[Ern007 in reply to Snowdrops_17]

I sure will Snowdrops😀

[SharonMcKnight]

What's a GA Ern?

[Mcwallace in reply to SharonMcKnight]

General anesthetic...

[Ern007 in reply to SharonMcKnight]

As Mcwallace says a General anesthetic...

[rosco59]

I’m so sorry to hear that but glad it’s been found early so hopefully it can be dealt with quickly. Sending you best wishes for a quick and successful outcome.

[Ern007 in reply to rosco59]

Thank you roscoe59 - Yes i's early, I saw it on the screen, was not very large or a bad colour. My new team seemed very capable and I believe they will get me in as soon as they can.

[rosco59 in reply to Ern007]

I’m very glad to hear that you have a good team. I do hope it all goes well and quickly.

[Ern007 in reply to rosco59]

Thank you rosco59.

[Spoticus]

My Sons Mother in law has just had the same op plus 6weeks of injections into site & after a 3 week break was expecting to have another 6 weeks but all good. No sign of the tumour & a break until October & another check . It seems bladder cancer is the one most likely to return. Hope they get you in soon xx

[Ern007 in reply to Spoticus]

Thank you Spoticus , I wish your mother in law, all the best. Yes bladder cancer is most liely to return, spotting it early is essential . xx

[Shirazmataz]

its a good thing they have found it quickly, and hope they get on with removing it for you Ern. All the best Sally.

[Ern007 in reply to Shirazmataz]

Thank you Sally - Yes they said 4-6 weeks, over before Christmas, well the normally do. Ernest

[Greenthorn]

As the song goes - You've got to ac-cent-tchu-ate the positive

E-lim-i-nate the negative

Latch on to the affirmative

Don't mess with Mr. In-Between.

Yes Ern, let's hope it's all clear for Christmas. And if you're not up to using paint brushes, you can conjure up some exotic beach scenes in your head.

My very best wishes Ern, to you and your family.

David

[Ern007 in reply to Greenthorn]

Thank you David for your good wishes,. You first 4 lines so correct - In fact mandatary. liked those 4 sentances .

I get a lot of support from Anne, she is a rock,

Yes I hope and believe this will be sorted before Christmas , I like my new team. my paint brushes help - a huge distraction.. The "beach scenes" sound inviting David, Every single holiday have had has been coastal.

[Jack70]

why will they not give you general anaesthetic

[Ern007 in reply to Jack70]

Because of my heart and lung problems. in a life or death situation I dare say they would, but for a tumor removal from bladder, a spinal is safer for me.

[Numptybrain]

Not the news you wanted but thankfully caught early. Good luck with procedure Ern , hope everything goes well.

Take care

Wendy xx

[Ern007 in reply to Numptybrain]

Thank you Wendy, Not not the best new, but better than it could have been, bladder cancer can sprout more than one. Really it's not bad,I just wonder and hope they zap it. xx

[Numptybrain in reply to Ern007]

Fingers and toes crossed for you xx

[Ern007 in reply to Numptybrain]

Thank you wendy xx

[Izb1]

I am so sorry to hear you have another tumour Ern but glad it is small and they have caught this early. I hope all goes well for you and you get in quickly. Sending big hugs stay postitive x

[Ern007 in reply to Izb1]

Thank you lzb1 - Yes i saw the tumour on the scope and it was not large, I will stay possitive x

[Ergendl]

So sorry to hear this, Ern. Hoping that the medics will be able to sort if very quickly for you.

[Ern007 in reply to Ergendl]

Thank you Ergendl - I am sure this new team I have got, will get me in as soon as possible, they really was good.

[jackdup]

so sorry to hear you have a small tumour but am glad it is small. I hope and pray it can be removed without issue and the BCG will take care of everything.

[Ern007 in reply to jackdup]

Thank you jackdup ,yes it's small and that gives me heart - yes I thought I could have no more BCG, that was areal bonus,

[katieoxo60]

Sorry to hear Ern007 that your cystoscope was not all plain sailing , these are the sort that reoccur, hopefully the waiting time does not go over the existing estimated. Take care one day at a time try to stay calm while waiting, you sound very positive , but it is a lot to take in when you are unwell and another thing happens. Bye for now.

[Ern007 in reply to katieoxo60]

Thank you Katie - It was not plain sailing as you say. but could have been worse, they found it very early and just the one. So optimistic.

[Bingo88]

Good morning Ern007. Sorry to hear your bad news. At least they have caught it early and hopefully get it removed soon and all will be well. Brian

[Ern007 in reply to Bingo88]

Thank you Brian,yes caught it early and this team really was good . 6 to 8 weeks but it could be sooner.

[Bingo88 in reply to Ern007]

Yes let's hope it is sooner 🙏. Brian

[watergazer]

A blow to have found the tumour however positives that it is small and operation will be fairly soon. Take care. Ern Stay positive xx

[Ern007 in reply to watergazer]

Thank you watergazer Yes you are right, found it in a very early stage. I hope the op is soon and Iam going back on BCG after, that's a bonus I did not expect xx

[B0xermad]

Hi Ern I hope you have a quick appointment for your surgery and it gets rid of the tumour. Such a worring time for you .Best of luck

[Ern007 in reply to B0xermad]

Thank you B0xermad - I hope it'soon, but at least they found it early. .

[MoosterMoo]

Sorry to hear this Ern, I hope the op is sooner rather than later. Wishing you the best of luck

[Ern007 in reply to MoosterMoo]

Thank you MoosterMoo - Between 6 and 8 weeks I was told, but it cold be less , Surgeon was fantastic.

[Loopylorre]

Sorry to hear this, good luck with how they decide to proceed, fortunately it’s been found early & they have a plan, sending healing thoughts 😊💐🌺 xx

[Ern007 in reply to Loopylorre]

Thank you Loopylorre - Yes found early and that could make all the difference, xx

[O2Trees]

This was so not what you needed Ern. But all I can feel is gratitude on your behalf that it's been discovered. Hopefully the biopsy will be negative - and that they get you in to sort it asap. Thinking of you xx

[Ern007 in reply to O2Trees]

To be honest I did not expect it, but Bladder Cancer is crafty and often does this, been caught early at least, Thank you 02Trees

[Mavary]

oh Ern what are you like. Well I hope they don’t keep you waiting too long because it’s obviously going to be a worry. Let’s hope it’s just a benign cyst.

[Ern007 in reply to Mavary]

Thank you mavery, I have a feeling it won't be malignant.

[Nicholatracy]

stay strong 🐞

[Ern007 in reply to Nicholatracy]

Thank you Nicholatracy

[Germantara]

As we get older they always finding some it but at least tumour is small and it can be removed and I wish you a good recovery

[Ern007 in reply to Germantara]

Thank you Germantara, Tumour is small - They will zap or remove it.

[MoyB]

I hope the treatment goes well, Ern, and you don't have too much pain and discomfort.

xx Moy

[Dottie11]

Sorry to hear this. Good that they caught it early. Take care.xx