My Condition and OP - Update.

[Ern007]

Hello all.

Was having a lie-in this morning - The phone rang and it was the urology waiting list people.

I was informed my op to see if the BCG treatment had worked or not, is scheduled for the 8th of October.

I doubt very much the BCG will have worked - I think my urology/oncology nurse thinks the same. I hope i am wrong.

After the op which is a Diagnostic cystoscopy and a biopsy in four quadrants of my bladder.

Then the consultant and MDT will then decide what they think should happen next .......

[helenlw7]

I hope the BCG will have worked. I’ll be thinking of you on the 8th of October.

[Ern007 in reply to helenlw7]

Thank you.

[Zand60]

Hope all goes your way, I'll be getting my flu and covid jab that day! Good luck 🤞Lesley xx

[Ern007 in reply to Zand60]

Thank you Lesley x

[sassy59]

Fingers crossed for the 8/10 Ern and I’ll be thinking of you.

Love and hugs, Carole xxxx❤️😘🩷🤗

[Ern007 in reply to sassy59]

Thank you, Carole xx😘

[Threecats]

I’m glad you’ve got a date and not too long to wait, Will be thinking of you on the 8th.

[Ern007 in reply to Threecats]

Thank you TC .

[peege]

Let's home it happens on the 8th, im sure you aren't looking forward to surgery but understand their need to confirm whether or not BCG has worked before moving to the next step. Really feel for you Ern and will be thinking of you. P

[Ern007 in reply to peege]

Thank you peege I think it will happen oh this time peege - it's not a nice procedure, but is crucial.

[CDPO16]

Good luck Ern xx

[Ern007 in reply to CDPO16]

Thank's Carole xx

[Rattled]

Very best of luck Ern. I'll be thinking of you on the 8th.

[Ern007 in reply to Rattled]

Thank you Rattled.

[Nula2]

Hi Ern, sounds like a very complex diagnostic op -but be good to get it done. Everything crossed that it's a better outcome than you're expecting 🤞🤞❤️xxx

[Ern007 in reply to Nula2]

It is complex - It is the only was to get this info, had a few before , really you are right, has to be done and thank you Nula2 xx

[Morrison10]

Finally managed to catch up, now going tomorrow to see my special consultant who knows about my rare condition PCD. Hope op goes well and result is better than predicted. Jean x

[Ern007 in reply to Morrison10]

Good luck with your "special consultant" - I hope things go well for you, I believe PCD centers are not that numerous.

Thank you whatever happens this I think my 6th cystoscopy will be the most telling. x

[Morrison10]

Yes there are only 4 main PCD centres in uk, where have equipment and specialists to identify condition. I had to travel to children’s dept at Leicester Royal Infirmary to have tests few years ago that confirmed that I’d lived with PCD for 84+ years. Children born with PCD usually died, and I’m lucky to have survived, particularly during war. My mother lived to nearly age 112, so I have good genes! Good luck and best wishes. Jean x

[Ern007 in reply to Morrison10]

Good on you - That's some story. My father died at 73, my mother at 60 with COPD - I have outlived them all despite what conditions I have. Thank you wish you well with your consultant x