My Cancer and other health issues update.

[Ern007]

After months of pretty bad news over my bladder cancer which is high grade and had spread to the inner linings of my bladder.

I was told I could not have BCG anymore and that was gloomy news.

I have an appointment tomorrow for a new three bladder cancer BCG Treatment.

I was surprised I was having this treatment.

I rang my cancer nurse today to ask could I have an earlier appointment tomorrow as 3 PM is a very bad time for me - Point being I asked the result of my biopsies as I had never been told.

She said "Your cancer is a little bit less high grade, that's why another chance with BCG..

At best and I would settle for this, would mean BCG every 3-4 months followed by a Cystoscopy or TURBT.

Why was I not told before by my consultant !!!

This is not a cure but it's at least good news, I remember after my first TURBT my cancer was 'superficial' then changed to high grade - But as I say, this is better news than I had hoped for.

My heart - I have Angina, AF and a leaky Mitral valve and Aortic valve. - of late my AF has been much worse - Having a quiet drink watching Netflix with Anne - it started worse than I have known, I did not sleep at all Monday night and this worsening has gone on for weeks.

My mitral valve last checked was mild. my Aortic valve had moved to moderate, and that can affect AF/irregular heart beat.

So made an appointment with GP for a week Tuesday, and she will probably organise an echo -

So that's an update on two of my worse conditions, sorry for long boring post,

[djbctla]

Hi Ern Not boring at all. I’m sure the doctor will give you a more detailed answer to your concerns.

Best wishes BERNARDINE 🌺🌺🌺

[Ern007 in reply to djbctla]

Thank you Bernardine. My GP would but I have had a lot of different answers from hospital. I went for a BCG last year and was sent home without, I have had treatment since and I think this will be OK -- Now I will look forward to next op to see if this lesser grade continues. I started of with low grade, then went high, now lower. I may know more tomorrow

[djbctla in reply to Ern007]

Best wishes for your GP

visit tomorrow ❤️❤️BERNARDINE

[Ern007 in reply to djbctla]

Thank you Bernardine, It's BCG ate hospital tomorrow. GP is in a week.

[Patk1]

I'm glad it's been downgraded slightly.Hope Yr gp can help with heart meds x

[Ern007 in reply to Patk1]

Thank's Pat - My GP will help, probably with an echo, they are accurate x

[sassy59]

That’s pretty good news about the bladder cancer Ern. As you say, better than expected.

Sorry to hear about your heart problems. Atrial fibrillation is a real nuisance as I also know but without your other problems too.

I certainly wasn’t bored reading your post and as always, I wish you well. Thinking of you.

Carole xxxxx❤️

[Ern007 in reply to sassy59]

Thank's Carole - After this treatment will follow with Cystoscopy in the New Year, AF is a nuisance it's worse than usual that's why I have made an appointment with GP - She will do the tests that is needed - I have not seen my Cardiologist for years.

I am thinking and hoping you are doing OK Carole and Pete. xxxx

[sassy59 in reply to Ern007]

I don’t blame you for wanting things sorted out heart wise Ern, I’ve no idea who my cardiologist even is.

We’re doing ok thank you. I’ll be seeing the oncologist at Portsmouth in February for a follow up. Fingers crossed all will be well. Xxxx❤️

[Ern007 in reply to sassy59]

Good you have a date for February Carole - Good they are not pushing to see you. I probably will have my cystoscopy to see how this BCG has worked.

I will be rooting for you Carole,

I see my GP a week Tuesday - I could have got in earlier but I wanted my GP. She probably will send me for an echo and that 's good, It hurts a bit with prodding, but well worth it.

Fingers crossed for you and us xxx

[sassy59 in reply to Ern007]

Thank you Ern, I’ll be rooting for you too. We’ll get there xxx🩷

[helenlw7]

It wasn’t a boring post at all. The news was good about your bladder cancer, although I agree your consultant should have given you the results. Hopefully your gp appointment will be positive.

[Ern007 in reply to helenlw7]

Thank you. Yes and if this is the result next time. My GP is good, she will do her best to sort that.

[HungryHufflepuff]

it’s definitely not boring. I’m glad the cancer is better than you expected. Hopefully you will also get some progress with your heart problems. Wishing you all the best with your appointments.

[Ern007 in reply to HungryHufflepuff]

Thank you HH - A slight improvement was the reason I can stay on BCG - My heart problems had for years, I will see what they come up with.,

[jackdup]

I certainly don’t profess to know anything about the cancer you have but do pray that the BCG treatment will be successful this time around.

[Ern007 in reply to jackdup]

Thank you Jackdup - On my 9th treatment some movement and I had to fight to stay on that.

[jackdup in reply to Ern007]

I knew you had several before but wasn’t aware it was 9, and also knew a bit ago you said they would not do anymore so happy to hear they are now going to do further treatments.

And never think your posts are boring. If someone doesn’t want to read that’s their decision but many of us are following along.

[Threecats]

Hi Ern, as others have said, your post isn’t boring at all. I’m very pleased to learn there’s been some improvement regarding your bladder cancer grading.

I’m sorry to hear the AF has upped a gear though. You have my sympathies with that one as my AF has been what I will politely describe as “interesting” since I picked up a chest infection a couple of weeks ago. I’ve had to increase my meds to try and calm things down a bit. I hope the GP can organise an echo for you to see what’s going on and get you some help with that.

All the very best for your appointment today. I hope all goes smoothly x

[Ern007 in reply to Threecats]

Thank you Threecats, I am glad with the good new, 1st time since I was diagnosed, AF - I probably will get an echo, seeing GP soon and she sends me, consultant, Why is he now? She gets things done x

[BronchyBronwen]

So glad you can stay on BCG, Ern. What's boring about this? Nothing at all! Really important stuff, and important we say what we need to on this great forum. Many imperfections with NHS right now, and I completely understand your frustrations, but please look at the bigger picture and let's all be thankful that you have been put back on the bladder cancer treatment. Wishing you best of luck. xx 👍🙂🙂

[Ern007 in reply to BronchyBronwen]

Thank you, Good Post -I am just allowed 15 altogether then no more but there is other treatment that can be given the same way xx

[Gingerninjas]

thinking of you .

[Ern007 in reply to Gingerninjas]

Thank you.

[SharonMcKnight]

Prayers....but I do know people with leaky valves who lived to a very old age. A smartwatch can tell you of any heart issues and alert you also and they're inexpensive.

[Ern007 in reply to SharonMcKnight]

Thank you Sharon - I have one valve moderate and one mild at last echo, I have made appointment so soon know, Just got back from BCG treatment, she told me just 6 more and that's it, I think maybe cause they are pretty toxic. I am getting a watch Sharon, I have Oxometer which gives just basic,

[CDPO16]

Thank you for taking the time to update us Ern. You have a lot to contend with. Wishing you well, Carole xx

[Ern007 in reply to CDPO16]

Thank you Carole - long way to go but I am pleased that I am no worse this time. Wishing you well Carole xx

[CDPO16 in reply to Ern007]

Thank you Ern xx

[stravinsky1]

It was not boring at all. It was very informative for me, so thank you. I had an ultrasound two weeks ago and am still awaiting the results. Having a CT with dye tomorrow and a cystocostapy on the 19th December. So doubt I'll get the results before Christmas. Results before then would be great whatever they are.

I wish you well and please let me know how things go

[Ern007 in reply to stravinsky1]

Thank you. Yes I recognise the tests, I had a CT with contrast, they a Flexy Cystoscopy - (home same day_ - The Flexy showed the tumour - Then I had a TURBT where they get rid of tumour and do biopsies, that's a 24 hour stay, - Then you will see consultant (if same as me) and your treatment plan will be given to you. ,,,,,,If you need to know anything, just ask Good Luck

[stravinsky1 in reply to Ern007]

Thank you, i will

[B0xermad]

Hi Ern anything positive for you is a bonus and I am glad you do have some positive news with your conditions. Wishing you better health

[Ern007 in reply to B0xermad]

Thank you. My cancer 1 grade improvement, now I hope GP will have some answers for the AF

[Bingo88]

Good morning Ern007. It wasn't a long boring post. I am sure it's of benefit to someone with what you have said. I am pleased that the information is better than you expected and hope you are still enjoying life the best way you can. Take care. Brian

[Ern007 in reply to Bingo88]

Thank you Brian, the news I got was what I never dared would happen, I have just 5 more BCG, then I will just me monitered, It's a step forward, instead of eternal back stepping.

[Mellywelly]

Consultant should have kept you up to speed 🙄 I am glad you feel a bit more upbeat with your situation. Keep fighting and I hope you stay well 😉

[Ern007 in reply to Mellywelly]

Thank you Mellywelly - Yea my nurse was up beat also, and you bet i will fight

[Nula2]

Hi Ern, thanks for keeping us all updated and no it's not boring in the least! Pleased the cancer news is a bit better than expected. Hope all goes well at hospital and you get a better time of day 🤞. Keep us posted of your visit when you feel up to it and good luck with GP's appointment next week 🙂❤️xxx

[Ern007 in reply to Nula2]

I was at hospital today Nula2 and had another BCG, I have then 3 more then that is it. It's not cured the cancer but it really has give it a bashing. I had a German Vaccine today and unlicenced, not really bothered I seem to tolerate, xxx

[Nula2 in reply to Ern007]

That's good because we'd all like to give it a good 'bashing' for you 🙂❤️. Take good care of yourself xxxx

[Izb1]

Not boring Ern, we are travelling this journey with you so thanks for the update. We are all rooting for you and wish you well x

[Ern007 in reply to Izb1]

Thank you Izb1 - I take your together point and it;s a good one, thank you for supportive post x

[Nula2 in reply to Izb1]

Well said Iz 👍😊xxx

[Vindicatrix]

Goodness Ern, my heart goes out for you, there is so much going on at the moment, your head must be spinning.

Hang in there, and take each day as it comes, look for any good news re your health that come's your way, and hope for more.

All the best. Ron

[Ern007 in reply to Vindicatrix]

Exactly Ron, I am grateful for any good news. I am hoping onwards and upwards,

[sunshineday]

Hi Ern, so glad you keep us posted, definitely not boring. All of us with health problems especially care about how our HU friends are getting on and the outcome of their treatment. So pleased you can further BCG treatment and hope it helps. Sorry to hear your AF not so good 🤞the echo. helps with throwing light on why the AF has gone haywire. Thinking of you and sending🙏and hope. Joy xx

[Ern007 in reply to sunshineday]

Thank you Joy, I think my AF is worse because I have two leaky valves, ECG soon and GP a week Tuesday. I am finding hard to sink in, I am a 1 lesser grade, xx

[Alberta56]

Not at all boring. Good to have positive news on the cancer front. Hope the AF will calm down and prove nothing too serious. ✌🤞🤞 xxx

[Ern007 in reply to Alberta56]

Thank you - I went for BCG today and nurse told me I was no longer at highest grade, I am allowed two more treatments counting this. I had to have a none licenced in UK treatment from Germany xxx

[Alberta56 in reply to Ern007]

Hope all goes well. xxx

[Ern007 in reply to Alberta56]

Thank you Alberta56. I have some hope xxx

[Handel]

Keep that lovely positive attitude Ern. You're the least boring person I know!!!

Thinking of you and the best of luck with everything.

Love and hugs. Jan xxx

[Ern007 in reply to Handel]

Thank you - hugs back at you xx

[Handel]

❤️💚💙 xx

[Stratos20]

My fingers are crossed for you 🤞🏼

[Germantara]

It's not a boring post I'm pleased to read how peaple are doing and reading when peaple are concerned or want hear about experience s and hopefully can offer some experience s from myself and sometimes we just need to talk to some one who understands cause not everyone does that's why this forum is a god send you're posts aren't boring to anyone take care

[Ern007 in reply to Germantara]

Thank you.