Bad health anxiety

[soapstr4]

Any one here have chiari 1 malformation? Haven’t been feeling well for 2 years, constant dizziness swaying and feeling off balance. Brain MRI shows I have chiari and it’s freaking me out.

[Leopard45]

I also have chiari and the exact same dizziness feeling. It’s terrible

[soapstr4 in reply to Leopard45]

Thanks for responding - what symptoms do you have? I feel like every doctor I go to blows off the fact that I have chiari- like it isn’t serious

[Adamj]

Have you went to a neurosurgeon? How bad is it are you okay now? I just was told I have Chiari malformation

[soapstr4 in reply to Adamj]

I went to 3 different neurologists and a neurosurgeon and they aren't helping - no-one knows if my symptoms are from chiari or a vestibular issue -

[Adamj in reply to soapstr4]

Oh darn I’m sorry

[Adamj in reply to soapstr4]

So I’m assuming you haven’t had surgery for it?

[soapstr4 in reply to Adamj]

No - going for another brain MRI first. Symptoms came out of nowhere in my early 40’s

[Cunosmom]

Hello, Have you gotten any help? I have Chiari Malformation Type 1, if you need someone to talk to. Feel free to message me (if that's allowed here, I'm not sure. I'm leaving this group bc I'm not a male, lol. Best wishes.