Serious issues with standing...

[Cherry_mvff]

Well it's been a week solid now. I promised myself I wouldn't devote any time to it and try to forget about it but that has become an impossibility.

Basically, I can't stand up for more than like, a few minutes. It's unbearable! As soon as I stand, I get this almost instant horrible tension that starts in my neck and usually spreads to the lower back of my head and even roof of my mouth?! It sounds stupid I know but that's the only way I can describe it. This all happens within a few seconds. Occasionally it may be a minute or two. No matter what I seem to do whilst stood, it doesn't go away, and usually gets worse until I can't bare it anymore (usually after only 4 or 5 minutes) and have to sit down! This feeling is usually accompanied by a weird off-balance/ dizzy feeling (not like vertigo, more like lightheadedness) which will come in soon after the tension and come in waves, normally getting worse and worse until I feel as if I'm going to pass out... It's UTTERLY terrifying! Even during the small gaps between the lightheadedness, if I walk, it literally feels like I'm walking on a trampoline or matress, like the floor is going up and down with each step (which I mentioned in my previous post)!

Really can't deal with this anymore. I thought I was struggling before but this past week has blown everything else out of proportion. I've read about "POTs" in the past and I'm basically convinced 100% that I have that or some other horrible dysfunction. I'm literally scared to get up and do anything, 'cause the longer I spend up eveyday, the longer the symptoms seem to stay, even when I'm sat down.

Like I've said previously, I've had an ECG and blood test whic were both absolutely fine, and my blood pressure has been taken multiple times and has never caused any concern! I've only ever had it taken sitting down though so that's why I'm so convinced they're missing something. You all know how it is haha.

Just need some reassurance until I can go back to the Doctor's! Does anyone else go through this? Would be helpful to know! And thanks to everyone that commented on my first post as well. Definitely made me feel a little better mentally xx Cheers!

[Lawley3]

I get exactly the same symptoms. As soon as I stand I can feel it going into my neck and back of head then I get the lightheadedness and off balance feeling and when I walk it is dreadful. I used to avoid standing up whenever possible but now I fight against it. I don't know what the hell is causing it, 2 yrs later and I still have the symptoms daily. I have seen countless doctors, physios, chiropractors etc still haven't got an answer. I even bought a blood pressure monitor for home use because I was convinced it was pots but my blood pressure is normal and goes up when I stand and my heart rate increases to a normal rate.

Sorry I can't be more help.

Best wishes to you

[Agora1]

Hi there, of course only a doctor can tell you what's going on by doing some tests.

I was told I had postural hypotension several years ago. I was in the hospital at the time for something else. When my blood pressure was taken, it was done lying down, sitting and then standing. The b/p would drop when I stood up. It was just a matter of adjusting my medications and I've been fine ever since. I wish anxiety were that easy to correct. I wish you well. xx

[Entropy]

I don't know if this is like what you have but I got a really weird neck stiffness where I didn't want to stand up. Something that oddly helped me was to wear a scarf all the time haha, it kind of took my mind off of it when I wrapped up my neck