First of all I am 52 year old female. I have SLE, chronic neck, back, and hip pain. For about a year I've been having these episodes while trying to drift off to sleep it feels as though I will stop breathing my heart will stop and my brain is dying. It may happen only once or it will happened many times before I can actually fall asleep. I have had a sleep study they said I have sleep apnea however it happens weather I am wearing my apnea mask or not. The above sensations happen in seconds but its a horrible experience. I deal with my chronic pain and my Lupus but this other thing feels like no one understands not family, friends, or physician. One doctor said I have sleep paralysis, which I looked up and Nope it is not that. One doctor said anxiety but I am do not feel stressed except for this sleep dying thing. I have found few articles from people who are suffering from something like I have but no answer of what it is causing the problem. Any suggestions or anyone have the same thing who have gotten help please get back to me ASAP. I want to go to a neurogist but need a referral and a way to explain my symptoms.
Thanks and happy sleeping to all.