Maybe a breakthrough!!😁

[Mumma_h]

My son has Tourette’s syndrome and associated disorders , (impulsiveness….) . I’ve never been able to get any kind of help for him here in Australia. He’s had dozens of hospital admissions ( probably way more ) and I’ve had him at every hospital , paediatrician, specialists , private drs … childrens hospital and NO ONE has stopped to look at his case not once . I’ve begged for help only to just be handed another dead end phone number that goes NOWHERE. Suicide attempts, (almost died last year )in fact been brought back to life several times , been outcast , wasn’t able to go to school beyond age 12 . Discrimination from family friends to the point of being completely alone , besides myself . It’s been a true nightmare beyond words . Well anyway, we went to the genetics specialist for a skin condition he also has and the top genetics professor in the hospital has put in a referral for a neuro psychiatrist. I hope my prayers are answered finally for my poor boy . Please god let this be the answer I’ve been praying for for so many many years . I found a specialist in USA recently so that was my next hope but don’t know how I’d be able to get him on a plane without a major disaster. . Thankyou to anyone who has read this , will you please say a prayer if you believe too 💕🙏🌈

[Hidden]

Great news! I also hope that you have found the help needed!

[Mumma_h in reply to Hidden]

Thank you!! I can barely believe he can finally (maybe) get some understanding and therapy …. It’s just been a very sad situation. I just presumed from the start with such an obvious illness there would be help , I was very mistaken. But maybe this is the start of something great for him 💕

[Hidden in reply to Mumma_h]

You're welcome! Please keep us posted if comfortable with that!Btw, can you lock this post? It's available for anyone to read if it isn't locked. Thanks!

[Mumma_h in reply to Hidden]

I appreciate that so much !! I will . If you read my other reply’s you’ll see how awful it has been. Thankyou thankyou thankyou . 💕. Also how do you lock posts ? Does that mean only people on HU can see posts/replies…

[Hidden in reply to Mumma_h]

Hi again! Go into your post and at the bottom you will find two radio buttons -- "everyone" and "community members only". Yes, locked posts means only community members see it.You are very welcome! I will read your story.

[Mumma_h in reply to Hidden]

Thankyou!! I will do that 💕

[Blue_81]

Ill be praying 🙏 for you!

[Mumma_h in reply to Blue_81]

Thank you so much , I just had to get it out, as family and friends don’t REALLY understand and don’t feel like telling them just to get a blank look and leaving me feeling to blame AGAIN, I want to feel hopeful for the first time in years . Very much appreciated 🤗.

[Blue_81 in reply to Mumma_h]

I totally understand. You need to get out your joy 🤩. Thats the great thing about here that we can share our joy and our sorrows of life. We are hear to support and cheer you on Ill keep you in my prayers 🙏🙏. You are strong person to go through all those stressful situations. Blessings.

[Mumma_h in reply to Blue_81]

Thank you so so much !!! It’s really appreciated a lot . It was kind of strange this morning, I woke up and thought wow , is this what it feels like to feel a lot less stressed and worried, to feel hope for the future again. I love my son so so much , I see his beautiful, kind and honest heart , where most people see annoyance , and stupidness in him and just a parent who hasn’t done so well at parenting . Peoples misunderstanding and judgment ruined our lives , but it’s not over yet 😁, I can see a happier future for him now . Thankyou for taking the time to send me a lovely msg 🤗

[Blue_81 in reply to Mumma_h]

Your welcome! Keep us posted on your sons progress! Our Children mean the world to us. Your a great mom for looking out for him.

[Mumma_h in reply to Blue_81]

Just having someone say kind words means so much!! I’ve stopped talking to friends and family about it, as it just brings me down to see that look on their face ,that it’s my fault and how did I let this happen? Im riddled with guilt anyway , so much so it sent me into the deepest depression. I didn’t even know a human being could feel THAT low , it was hell . My close friends don’t even know he tried to take his life in a very horrific way , he cut his own throat several times and was 4 hrs in surgery, he’s extremely lucky to be alive , . Can you believe he was discharged 48 hrs later , I just can’t wrap my head around it!!! They weren’t just superficial cuts either. I just dont understand our drs here, I never though for one second he wouldn’t get care after that . I presumed he would be in the psychiatric ward for at least a few weeks . It makes no sense to me except that maybe they think he deserves it and im just a terribly bad parent. I have 3 other adult children without Tourette’s syndrome and they don’t have the problems he has and they’re all doing well . This keeps me going and giving me a spark of hope that ,no , it’s not bad parenting, but it’s his condition. Sorry for long reply , once someone stops to listen I just blurt it all out . Thankyou so much . I will post how he is doing down the track when /if he gets the appointment. I hope you’re having a good day !!! You’re a VERY caring person 💕🤗

[Blue_81 in reply to Mumma_h]

Im sorry to hear about your son. Dont worry about the long reply we are here for you. Sometimes we just need to get it out, specially when its eating you from the inside. I’ve been praying that everything will come out good. I cant believe he was discharged that soon. If you can keep me in your prayers as well. Health wise not doing well. Whenever you need to talk, you can also PM me.

[Mumma_h in reply to Blue_81]

Thank you blue, it really means a lot ! I couldn’t believe it either . I’ve made a formal complaint to health commission and then was passed onto mental health commission who have now said I need to make a complaint against the psychiatrist who discharged him . I begged them to keep him in , I was even getting msgs from my son he would hang himself as I was begging psychiatrist. He went missing for 5 days afterwards, presumed dead , but was found and someone called ambulance. The search party was extensive, helicopters….. dog squad … it was a nightmare. It can only be by the grace of god he is still here . I don’t like making complaints….. but I feel I have to , not just for my son but for others in similar situation. The other patients in there were wonderful with him , especially some of the older blokes , they rallied around him and everyone was shocked to see his injuries. I’m in tears that a stranger has listened to me and allowed me to speak about it . It means so so much to me ! I’m praying for you ! Please god , you CAN work miracles, please do this for this dear friend who has shown so much compassion! I will continue to pray for you . 💕💕💕💕💕

[Mumma_h]

I’m saying a prayer for you too, right now . For a miracle that whatever is hurting you in life will be taken away 💕