All time low

Got sent home from work because I collapsed legs went from under me

[GlassPoodle]

I’m sorry Emily. Are you okay?

[Hidden in reply to GlassPoodle]

restng up thank you

[Hidden in reply to GlassPoodle]

Sorry thank you will be

[Vonnie50]

You ok hun ?

[Hidden in reply to Vonnie50]

Resting so fed up with myself....how are you...think everything is getting on top of me....I am just not getting the sleep nor coping very well

[Vonnie50 in reply to Hidden]

I know exactly what you mean. Still feel low a lot too. You will get there I am sure. I feel unwell at the moment dizzy and bit less breath than normal. Don’t sleep well either think it makes us low on immunity side . Thinking of you x

[Hidden in reply to Vonnie50]

Why unwell is it copd

[Hidden in reply to Vonnie50]

How have you managed to come to terms with your diagnosis

[Vonnie50 in reply to Hidden]

Nope not at all. Keep panicking and scared

[Vonnie50 in reply to Vonnie50]

my grown up kids don’t understand and say stop worrying your fine x

[Hidden in reply to Vonnie50]

So do mine which adds to my worry as my heart breaks for them as well...

[Hidden in reply to Vonnie50]

What's your fears.

[Vonnie50 in reply to Hidden]

Terrified of suffocating and generally getting worse

[Hidden in reply to Vonnie50]

My fears are getting worse leaving my babies...them seeing me suffer losing my independence. Not being able to work ...when do we come to terms, everyone tells me I need to

[Vonnie50 in reply to Hidden]

I am told exactly the same. I just don’t know how either. Are we similar age? I worry why so young too

[Hidden in reply to Vonnie50]

I am 57

[Vonnie50 in reply to Hidden]

I’m 52 diagnosed 2 years ago roughly

[Vonnie50 in reply to Vonnie50]

Scared I will die quickly

[Hidden in reply to Vonnie50]

I have that fear to ..2 years and still not come to terms with it, but you still here 2 years on x

[Hidden in reply to Hidden]

I am mild/moderate

[Hidden in reply to Vonnie50]

I wish I hadn't looked anything up and just believed what was said to me initially

[Vonnie50 in reply to Hidden]

Snap me too 100%

[Hidden in reply to Vonnie50]

Some days I am in total denial ..which helps ...I realise no one can predict our future, but we are doing

[Vonnie50 in reply to Hidden]

Yes I know. I have days I think I am dealing with it then wham panic again

[Hidden in reply to Vonnie50]

What are the people in your rehab group like...mine are gasping for air

[Vonnie50 in reply to Hidden]

2 are bad on oxygen and gasping rest seem fine and all over 67 except me. Which makes me worry as why me so young

[Hidden in reply to Vonnie50]

See all my gasping one lady had it 6 years one had it 30 years ...

[Vonnie50 in reply to Hidden]

Nurse told me a lot of ones that are bad have other illnesses like heart problems or mobility issues and have had a lot of sickness so that’s why there worse. But 1 man with oxygen had no illness at all. He got pneumonia and ended up on oxygen

[Hidden in reply to Vonnie50]

Oh god no how old is he...I have asthma sleep apnea acid refux hernia actpoic heart beat low blood pressure so guess they will not help

[Vonnie50 in reply to Hidden]

He is elderly roughly 78. I have hiatus hernia, acid reflux and dodgy knee lol

[Hidden in reply to Vonnie50]

Diagnosed this year with asthma scared stiff...have got mild sleep apnea and consultation said wont get better but now I stop will get no worse...blf say otherwise

[Vonnie50 in reply to Hidden]

Do you have emphysema too ?

[Hidden in reply to Vonnie50]

Yes I do consultation said mild other consultant said moderate

[Vonnie50 in reply to Hidden]

Make there bloody minds up! No wonder we worry don’t know where we are do we ?

[Hidden in reply to Vonnie50]

No we don't well if we go on the forum yes we do coz most have progressed a few I think haven't...

[Vonnie50 in reply to Hidden]

Mixed lot. Some have some not. Think that’s what worries us. No definitive answers

[Hidden in reply to Vonnie50]

Do you know when I am told ...you stop smoking you will not progress I feel fine until I realise that makes no sense...I have nurse saying how do you know you will be as bad as people at rehab...she said some people progress fast other hardly at all...don't get that...my says drop when I am walking so keep thinking here comes oxygen..

So much spinning around in my head.

[Vonnie50 in reply to Hidden]

I missed a session already as too unwell. Yes conflicting information one says no progression after stopping smoking and keeping active, other saying progressive. No wonder we can’t relax

[Hidden in reply to Vonnie50]

Most say progressive slow..what about people who have never smoked or get it years after smoking ...i want my life back before this but i know that life has been replaced with fear

[Vonnie50 in reply to Hidden]

Same I have little interest just feel low. Apart from seeing daughter and son and 2 little grandchildren I go nowhere to scared I’ll get ill or have panic attack

[Vonnie50 in reply to Hidden]

I got mine 5 years after stopping 😥

[Hidden in reply to Vonnie50]

See so do I believe I stopped dec after hospital admission..wasp you around smokers

[Hidden in reply to Vonnie50]

Get well soon

[hypercat54]

Connie and Emily as you both know I am at the same stage as you. None of us are going to reach a stage where we lose our independence even if our lung function is reduced by half. Even those who are severe are completely independent, work full time and have a good quality of life. Starting from a mild/moderate level rarely goes to severe and even if it does it would take around 30+ years to get there -do you still expect perfect health (even if you get there) in your late 80's or early 90's.

It would be a great pity to ruin the rest of your lives through anxiety which is the bigger issue you are both suffering from.

I am aware that neither of you will believe me but I am stating facts x

[Hidden in reply to hypercat54]

I agree with you but one Nurse have me at 3 years then down hill

[Hidden in reply to hypercat54]

I think now HyperCat that it's the conflicting views along with panic ... and seeing people 2 years on with sane fears when will I come to terms with it..my sats drop when I walk so so worried all the time

[hypercat54 in reply to Hidden]

How low do your sats drop? If they are still 90 or above there is nothing to worry about. Everyones sats naturally vary by a few points depending what we are doing and the weather affects them too x

[Hidden in reply to hypercat54]

Sometime 88 if running but 90 92

[Hidden in reply to hypercat54]

You comfort me

[Tia4209 in reply to hypercat54]

You are such a sweetheart hypercat

[Hidden]

I had nurse give me 3 years before I got worse emphysema as well asthma

[christina1947]

Hi Emily I would believe my consultant they are very knowledgeable doctors they know what they are talking about and seen your diagnosis many many times if he says don’t worry then you have nothing to worry about . Are you having any meds for your ectopic heart beats and low BP take care. Xxx

[Hidden in reply to christina1947]

No meds dr said he wasn't worried about my ectopic heart beat..I am also gave me nothing for low BP is there things I can have

Problem one consultant said progressive another said not..health websites say progress...

Can I have stuff for ectopic heart beat and low BP, so I can ask

[hypercat54]

Hey, you listened - I am in shock! I reckon either you misunderstood the consultant or they were clumsy in their words when you were told it wouldn't progress after you stopped smoking. They would have meant, as everyone's lung function decreases naturally with age, that yours wouldn't progress more than that.

As for that nurse tell the next medical professional you see about it and see what they say x

[Hidden in reply to hypercat54]

No said I wouldn't progress that what he said one other said I would but slow...I know its progressive...nurse said I could stay like this for 3 years...I am so frightened and you know I am ...I don't want to get worse but got no control over it...counselling they want me to do in group I cant do that, so suspended till they find a 1:1 ...at a told loss and scared

[hypercat54 in reply to Hidden]

Once you get your anxiety under control you should see a big difference in your mindset.

[Hidden in reply to hypercat54]

Thank you hope so

[Vonnie50 in reply to hypercat54]

Thank you hypercat ❤️

[hypercat54 in reply to Vonnie50]

You are welcome x