When will this END?!

[rachel913]

I am SO TIRED of feeling this way every single day. Constant lightheadedness + dizziness, heavy head + eyes, fatigue, palpitations, and just horrible scary thoughts.

It is ALWAYS the worst in the mornings for about 4-5 hours after I wake up and it gradually lifts as the day continues on (although it never goes away entirely).

This isn't a way to live, it just isn't... I've tried reducing my stress, doctor trips/numerous tests, medication, dieting, exercise, meditation, relaxation techniques, acceptance, and nothing is helping me. I'm at a dead end

[Hidden]

You sound like me before I remembered that I injured myself before all this happened. Do you have any back pain?

[rachel913 in reply to Hidden]

Not really, no... just a lot of muscle tension from stress and poor posture.

[Hidden in reply to rachel913]

if you end up having back problems in certain areas (especially the thoracic spine) it will cause a lot of the problems we are experiencing.

[rachel913 in reply to Hidden]

There is pain there but it's not severe or even enough for me to take medication for it. I saw a chiropractor as well.

[Hidden in reply to rachel913]

You should probably get an MRI of your spine. I was very surprised when i found out how bad my back became after 10 months of doing not much.

[Starrlight]

How long have you suffered with this? I have had some of those symptoms which I thought were anxiety but it very well could have been meds I was on. It sounds like you’ve tried so many things in attempt to figure it out and stop it and I really don’t know what to suggest but I am sending good vibes to you and saying prayers for you. I think you have got to be so strong enduring what you have.

[rachel913 in reply to Starrlight]

Thanks so much.. I've suffered with it for 2.5 years.. it's gotten a little bit better over the years but it is generally still the same symptoms. I had gene testing done to determine what meds I can and can't take for this as well.

[Starrlight in reply to rachel913]

Good idea to have the gene testing done. My doc told me that testing is used only to see what dosage of med would work so he is lying to me. Well I’m so so sorry to hear you’ve been suffering that long. I can’t recall how long it was for me. My memory is not so great.

[rachel913 in reply to Starrlight]

I'm sorry :((( so wait, did you suffer from constant lightheadedness/dizziness too?

[Starrlight in reply to rachel913]

Sorry, yes I suffered from lightheaded ness/dizziness , feeling spaced out, poor concentration, an unquiet mind. And some of these still pop up. I would see things looking pixelated too and like everything was spinning

[rachel913 in reply to Starrlight]

It's crazy that SO many people suffer from this.. and some people's go away and some stay... do you know what you did to get rid of these sensations or did it just gradually go away on its own?? I'm desperate for advice! haha

[Starrlight in reply to rachel913]

I hear ya! I was desperate too. My best friend was sure it was mostly due to the med I was on Buspar or buspirone and my psychiatrist said it was from anxiety. I think both sound like could have been true and it did all go away. I am hoping it will go away for you too.

[rachel913 in reply to Starrlight]

well you are very fortunate.. i hope mine goes away as well is your anxiety under control now? like did the symptoms go away once your anxiety lessened?

[Starrlight in reply to rachel913]

Well the symptoms were anxiety provoking in itself so when they lessened my anxiety was less. I still had anxiety just not to the extreme. ((((((Rachel))))) 💕

[Blessed28]

I feel your pain am going thru the same symptoms rights now it's unbearable how do u cope daily what medications are u on

[rachel913 in reply to Blessed28]

it's horrible!! i lay down for half the day then am able to do a few things in the afternoon/feel better as the day goes on but it's always there. i just try to remain positive but it is HARD. i'm on pristiq 150 mg since june and xanax as needed, but i rarely take it. how about yourself?

[Blessed28 in reply to rachel913]

It's constant mostly I try my best to function mostly lie down too I feel horrible like a failure some nights I feel better but it's always there r i wonder wen will it return am thinking about getting medication I can live this way never being able to just relax

[rachel913 in reply to Blessed28]

Mine is constant as well.. I feel like a failure too. It has taken away so much of my life from me and I'm willing to do anything to get my life back. Medication is definitely worth a shot, you never know!

[Blessed28 in reply to rachel913]

It's just horrible I feel like am trap and there is no way out they say try go for walk exercise how do u do that when u feel this way thou

[rachel913 in reply to Blessed28]

TELL ME ABOUT IT. i can barely walk for a continuous 10 minutes. some days its so bad i barely walk at all.

[Blessed28 in reply to rachel913]

Like am empty doing stuff barely functioning

[Sillysausage234]

Don’t give up the fight,keep eating healthy go for walks,keep practising relaxation techniques,maybe meds giving you a hangover ,✌🏼🎵🎶🎸🍀🦋

[rachel913 in reply to Sillysausage234]

Thank you Alan234!

[Hidden]

I find it crazy how I can relate to so many posts on this forum, I have EVERYTHING you mentioned, I can't get mine to go away and I've had it for so long. I'll list some of what I am diagnosed with, PTSD, DP/DR, HPPD, Anxiety and Depression of course.

My thoughts on what it could be is just the deep set anxiety in my mind that is causing long lasting symptoms that just stay with me, I feel that's really how such strong anxiety works. It just keeps adding layers of symptoms till they just stick.

Or I have a feeling its something to do with my neck as a bad neck can be a common cause of dizziness etc.. I am inside my house everyday as my conditions above have left me agoraphobic so it can't be healthy for my spine.

I had been waiting for 3 years to see a specialist for my mental health and just saw the Dr. about 5 days ago and since then my heads been slightly better, I think that's just a big worry gone so it makes me think its more to do with deep anxiety..

Starting to waffle a bit here so yeah. Good luck with it.

[rachel913 in reply to Hidden]

I can't get mine to go away either! I too have PTSD/anxiety/depression, i also have ocd tendencies. I am also in my house the majority of the day because I just can't stand the thought of going out in public while feeling this poorly.. doctors appointments are my biggest nightmare.. they exacerbate my symptoms so much.

that does make a bit of sense though that your symptoms would lift once you went to a specialist to ease your mind. does this specialist also think this is purely anxiety?

i'd love to chat with you more.. feel free to message me if you wish.

[Hidden in reply to rachel913]

Yeah sure I’ll send you a message

[Hudgins150]

I’ve tried a lot of pain medications from my doctor. I was told even if nothing is wrong physical, depression-anxiety can really cause pain...I’m now taking gapapentin and meloxicam and both are safe. I was taking hydrocodone/acetaminophen but was scared to get addicted

[Ashley1489]

I wish it would get better I am your twin literally

[Hidden]

Hey Rachel, Im Darian. I can relate to everything that you just said and were going to get through this together. I recently started taking magnesium 250 mg over the counter to calm me down and its working although I still tend to overthink everything! Just take it day by day like I am trying to do and hopefully it'll get better. Prayer really works at calming me down if youre religious.

[rachel913 in reply to Hidden]

I love prayer, it helps me so much. Thanks

[froggymom88]

Hi Rachel913. I'm so sorry about your terrible suffering. I know my son has many of those symptoms when he has missed some medication and then gets back on them or when he changes medication. My heart goes out to you. I know from him how terrible it can be. The only thing I can do for you is to pray for you. I will keep you in my morning and evening prayers. May God lead you to the right doctors, medication and answers you need for healing.

[rachel913 in reply to froggymom88]

Thank you so much!

[Hidden]

Have you tried going on a hike or simply getting away from technology?

[rachel913 in reply to Hidden]

Can't hike with how dizzy I am constantly. I try to destress as best I can.

[Strongest123]

Hello. Have you’ve had a sleep study? It could be sleep apnea. Samson

[rachel913 in reply to Strongest123]

I've considered it, but I'm hesitant.

[Hidden]

Hello Rachel, I believe in you.

You are a strong girl, so don't give up,

We're all with you!! Fight!!!!!!you can do it!!😊🌞

[rachel913 in reply to Hidden]

Thank you!!!

[maslater]

My advice is to continue to try different medication until you find something that works. Maybe even a different doctor. I’m on 20 mg Lexapro for the past 5 years and Xanax as needed. It’s made a huge difference.

[rachel913 in reply to maslater]

Just adjusted my meds today, will be taking the new doses tonight. Hopefully this will be the right concoction! haha