Suffering with depression!!

[Lily28]

For couple of years now I've been with depression because since I've been diagnosed with fibromyalgia my life has changed 360o completely I haven't got life anymore !!

I feel very lonely and hopeless 😢

[RENEENAY444]

I am sorry to hear. If it is any help, my life turned 360 too. It is a living hell. Keep posting for support. This seems to be a great place.

[Tillyray]

Dear Lilly. Hi, I'm new here and wanted to reply because I have fibromyalgia too and have recently been diagnosed with a rare connective tissue disorder 'hypermobility ehlers danlos syndrome'. It is hereditary and sadly my son is also affected..I can understand how you are feeling and I know just how difficult it all is. Having an illness which no one can see, that causes so much pain, random debilitating symptoms, and complete exhaustion at any time without warning is absolutely scary, and both physically and mentally incapacitating..

My illness has been a long one, but it became suddenly worse 10+ years ago and I was diagnosed some years later with fibromyalgia. I have had kidney problems along the way, and my health and mobility has got much worse again in the last couple of years.. I knew after much research that I had something else going wrong with me,and I recognised the same symptoms in my son. After a long medical journey we were both recently diagnosed with hEDS..

I had struggled with my original diagnosis of fibro because for a long time I also experienced other symptoms that didn't fit it. Doctors did not understand and I was left to rot by the medical profession. This caused me further anxiety having to cope with unrecognised symptoms and little if any medical help....Then after an unexpected flare of symptoms and illness which left me with total disability, I suffered a period of depression...

During this time I can recall very little. I know that I felt empty,hopeless and had dark thoughts. I could find no joy in anything and just felt numb..I missed out on so much, my new grandchild and family moments. I went through the motions but I wasn't there...I remember wanting to feel different and wishing I could but what was the point... and then at my granddaughters 1st birthday with family members, I had a realisation that I had missed over a year,and the other family members hadn't...I wanted to be able to be like them, I wanted to be able to be involved and part of it... I felt overwhelming grief at the loss of the year I had missed... Somehow, after that things gradually, slowly got better..

I had to learn to accept my new state of health and disability.Somehow I have accepted it, and I am prepared to accept whatever else comes along with these health conditions that I have. It isn't always easy and the excruciating pains and flare of illness gets me down, but not forever. I dont want it to rob me of my life and what is precious to me...

Life for you can still go on and you can enjoy it like you use to, only now you will have to learn to accept that it is going to be different. But that doesnt have to be a bad thing, and accepting doesn't mean giving up or giving in to it....

I was active, loved walking in the country, and so that was a sad loss to me when I could no longer do it...I don't want to lose out on the things I enjoy, I realised that is far worse than being seen riding on a mobility scooter -it took some getting used to being a 'modern early 50's' 🙂 - but I am still me and you are still you, but with a difference... Life is full of challenges and this is just one of them, and it is how you decide to view it... We all change in some way over time,and we have to roll with it, this is just one of those times..

I wish you the very best. You can msg me if ever you want to.xx

[Lily28 in reply to Tillyray]

Thank you very much for your lovely words, sorry about the situations you had been through, like you said it is difficult learn to live with all these Heath issues.

I was diagnosed with lupus in 1989 since then I had been dealing with many different conditions due to lupus, in 2012 I was diagnosed with fibromyalgia since then my life is miserable and very sad, I know it is very difficult but I need to learn to live with these illness.

Thank you very much your comments are very lovely !!

I really appreciated!!

Xx