The prompt says: "Tell Your Story." Well, it's my husband's story almost identical to 5 months ago, 3 months before that, and multiple months before that, so I'm repeating the posting from 5 months ago below. He's stable again with nearly identical numbers. ALP 38, PSA 0.10. He was a Gleason 9 now in his 9th year. With each visit we expect the worst, but whatever he's getting and doing has kept him stable since 2019 when he started chemo, which ended seven months later in 2020. He's basically had the plain vanilla treatments men were getting from 2014 onward. The only out-of-the box treatment was 10 Docetaxel infusions, not 6--rough. He even kept his port in from 2018 until last year since he was sure he'd be getting Jevtana, Pluvicto, and some of those other treatments. He got his fourth pacemaker in January this year (planned not emergency), so the port had to come out. It's not all a walk in the park since Lupron + Xgeva are both fatiguing and draining. This disease and the treatments for it are variable to each man, but whatever you're getting, we wish you similar stability.
The 5 months ago report:
Again, Mr. Spouse's (age 78) 3-month results are boring in a good way. See Profile for details and history, which are, essentially: 2014: high Gleason 9, low PSA, 3.38* followed by 3 yrs. Lupron, 9 weeks IMRT, later Zytiga (failed); 2019: 10 Doxetaxel and indeterminate length of Xgeva; Lupron life sentence. No supplements after anti-neuropathy supplements did nothing awhile back. Gets Vitamin D from sunshine, not out of a bottle. His calcium is good with no supplements.Whatever the alchemy of his care, so far so good, i.e. continued stability since end of chemo in 2020. Results two days ago 9/30/2022: PSA: .15; ALP: 40: CALCIUM: 10. I'm reporting results because Mr. Spouse 21 is one of the "fortunate" guys who's gotten some mileage out of chemo, which ended in 2020. I'm always surprised when I update Profile, which is getting as long as War and Peace. Things didn't look that way at all in 2014. He's starting year 9 next month and has been heavily treated with all the stuff men hate: Lupron, radiation, chemo, Xgeva.Side effects after all this treatment: He's fatigued and ache-y--not his pre-PCa self--but still rides his bike like a maniac multiple days a week + intermittent energetic grandparenting, ; some brain fog; some neuropathy from chemo despite icing and trying recommended supplements; feels lousy in the AM. Lupron really does suck but we still have as full a life as you can have while avoiding Covid. Pre-Covid, we did some adventure travels overseas and kept up with family life during all phases of treatments. He's been a big exerciser throughout to stay in mental and physical shape for all these treatments. *High Gleason, low PSA guys should get scanned more frequently. Remind the oncologist of this if they forget as ours did in 2019 when scans revealed mets all over after a year went by between scans. Now on 6-month scan schedule.
Reaching Castrate Resistance? Increase in PSA,ALP.
Should my advanced micrometastatic treatment be more aggressive
