Boring! (In a good way.) : Mr. Spouse2... - Advanced Prostate...

Advanced Prostate Cancer

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Boring! (In a good way.)

spouse21 profile image
12 Replies

Mr. Spouse21 had bone and CT scans last week. Everything looks stable since the Jan. 2022 scans six months ago, PSA=.15. ALP=40. (My profile of him is very detailed if anyone wants to look at the history.) Mind you, Mr. Spouse21 ended his 10th docetaxel infusion over two years ago, which is a very decent result that a lot of men don't experience. Who knows why? We sure don't.

He's on the Lupron life sentence and gets an Xgeva shot every three months. Both suck. Except for the extra three chemo infusions, everything else was good old SOC--Lupron back in 2014 for three years, followed by 9 weeks of radiation; then a few years later Zytiga for a few months before failure, then Lupron again, seven months of chemo, Xgeva. Like many men here and their partners, we're wrecks before every visit.

I'll add what I've added before for men and the partners who care for them who want to know what may be possible after big-time chemo. Mr. Spouse21, age 78, just came back from a 22-mile bike ride today in 90-degree heat, something he's done every single summer several days a week. Not everybody will be able to do that, but it's his teeny data point. He does it to keep from blowing a Lupron gasket and to stay in shape for all the current and future treatments. As many here know, some wonderful men on HU also biked like mad, had same treatment or heavier duty treatment (Cleodman and Tom in MA--miss them so much) who got much less out of their treatments before they died from this wretched disease.

We try to enjoy our lives while keeping a realistic eye on where advanced PCa can go and that the situation can turn very suddenly. But for today, we feel good about the latest nail biter.

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spouse21
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12 Replies

That’s a very good news. I’m glad for Mr. Spouse21’s Pca situation. All the best to you bothRy-mother of Dawn

spouse21 profile image
spouse21 in reply to

Thanks, Dawn. Like many here, we enjoy our lives as much as is possible, in those chunks between appointments.

treedown profile image
treedown

Mr Spouse 21 is rocking it at 78. Shout out to Cleodman and Tom and add Patrick Turner to that list. They are missed.

Kaliber profile image
Kaliber in reply totreedown

Amen brother ….❤️

treedown profile image
treedown in reply toKaliber

I wish we had some kind of wall of remembrance on this site. So many members just fade away toward the end. I mentioned PT because of the bike ride but there's so many more I have not forgotten, including those that may be well but are noonger involved.

Kaliber profile image
Kaliber in reply totreedown

Well, you could make a “ remembrance “ post ( say ) twice a year and people could make comments, add to the list, etc. … if they wanted. Dunno … it’s kinda morbid for croakers tho, wondering when / if you’ll be on that list soon yayahahahaya.

treedown profile image
treedown in reply toKaliber

Yeah, its not a well thought out idea. It's just that these men and caregivers give us, at least me, so much info which is priceless in my opinion.

Kaliber profile image
Kaliber in reply totreedown

100% agreement buddy …😁😁😁

CAMPSOUPS profile image
CAMPSOUPS in reply totreedown

I agree too. I'll add that along the way they also give us so much insight into their humanity. Are and have been some remarkable people here.Its very sad and emotional for me sometimes when I accidently find them again in an old post I am digging thru to find something.

Kaliber profile image
Kaliber in reply toCAMPSOUPS

❤️ …

Scout4answers profile image
Scout4answers

He does it to keep from blowing a Lupron gasket and to stay in shape for all the current and future treatments.

Right on!

j-o-h-n profile image
j-o-h-n

I say every year we have an ice cream blowout party (unlimited ice cream) dedicated to all that have passed on....Hey...... please pass me the Chocolate chip ice cream (two scoops).... thanks.....

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 07/13/2022 6:27 PM DST

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