Update on my disease: <0.1 PSA today - Advanced Prostate...

Advanced Prostate Cancer

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Update on my disease: <0.1 PSA today

bezen profile image
16 Replies

I haven't posted anything since my first post last October. Today is a good day for an update as I just finished radiation therapy and got my latest test result showing a <0.1 PSA! This is down from a high of 345 in early October. My initial biopsy confirmed Gleason 9 (4+5) in two cores and all cores positive. So last October things looked pretty scary for a while.

A lot has happened in the last 8 months:

- clean CT, MRI, Bone and Axumin PET scans

- RALP surgery performed Thanksgiving week at Johns Hopkins

- post-surgery PSA 0.5 confirmed in two additional tests

- pathology report confirmed biopsy, showed pT3B, N1 disease, positive margins at bladder neck, 1 of 16 lymph nodes positive; seminal vesicle involvement.

- started ADT in April with Eligard, Bicalutamide (30 days). Added Zytiga and prednisone early-May. Long term ADT 2 to 3 years planned.

- image-guided IMRT, 38 treatments, started April, finished June 18.

That brings us to today. I feel extremely lucky to have such a good result at this point. I think my care at Johns Hopkins and locally has been outstanding. I don't want to be on ADT for 2+ years, but Johns Hopkins is hoping all this will be curative, so will stay the course. Side effects of the SRT and ADT are what you would expect: lots of hot flashes, mild incontinence, total impotence, occasional light-headedness / dizzyness. I expect the incontinence to go away, hot flashes are irritating but tolerable. Gotta see what we can do about the impotence. All in all, I feel extremely fortunate.

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bezen
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16 Replies
bezen profile image
bezen

Also, didn't know this site is seeking donations. Donating now. This has been a wonderful resource. Thank you to everyone.

j-o-h-n profile image
j-o-h-n in reply to bezen

Good news, thanks for your donation....

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 06/21/2019 11:41 AM DST

snoraste profile image
snoraste

well done. Keep it up!

tango65 profile image
tango65

Congratulation. Best of luck with your treatment.!!

AlanMeyer profile image
AlanMeyer

Congratulations on your great treatment and positive response.

As for the hot flushes, every time I had one I thought "Yay! These drugs are doing their job!"

Best of luck.

Alan

JamesAtlanta profile image
JamesAtlanta

Congratulations - such great news!

Best wishes,

James

Tub111 profile image
Tub111

Excellent news!!!

Sheri (cheerleader for you all now)

keepinon profile image
keepinon

I thoight I was reading my own tx history at first. Just a few months behind you. Scheduled for SRT as soon as my incontinence gets better. My current psa is also .1 My RO says i can wait a bit.

Best of luck to you!

in reply to keepinon

Way to go!

pleinairpainter profile image
pleinairpainter

Congratulations! Thanks for sharing. Keep up the good fight!

tom67inMA profile image
tom67inMA

That's great news! ADT is no picnic but you have a chance at a cure, keep up the good fight.

Good news!

dougnola profile image
dougnola

Whooh hooh! Sending my positive vibes to you! I started zytiga/prednisone w lupron in May 2017 after radiation/chemo and bicalutamide/casodex to knock down my 500 psa. It kept getting lower for a year and finally went ND 8/18. So you still may keep dropping, my friend! 0.1 is basically zero though. Yay! :)

in reply to dougnola

ND the place ... to be ..ah to be Castrated , 4 yrs now for me ,,whoohoo,

jfoesq profile image
jfoesq

Congratulations! It's nice to read about such a positive result.

Great news! Now keep it going ...Curative is good.. good luck ..

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