I haven't posted anything since my first post last October. Today is a good day for an update as I just finished radiation therapy and got my latest test result showing a <0.1 PSA! This is down from a high of 345 in early October. My initial biopsy confirmed Gleason 9 (4+5) in two cores and all cores positive. So last October things looked pretty scary for a while.
A lot has happened in the last 8 months:
- clean CT, MRI, Bone and Axumin PET scans
- RALP surgery performed Thanksgiving week at Johns Hopkins
- post-surgery PSA 0.5 confirmed in two additional tests
- pathology report confirmed biopsy, showed pT3B, N1 disease, positive margins at bladder neck, 1 of 16 lymph nodes positive; seminal vesicle involvement.
- started ADT in April with Eligard, Bicalutamide (30 days). Added Zytiga and prednisone early-May. Long term ADT 2 to 3 years planned.
- image-guided IMRT, 38 treatments, started April, finished June 18.
That brings us to today. I feel extremely lucky to have such a good result at this point. I think my care at Johns Hopkins and locally has been outstanding. I don't want to be on ADT for 2+ years, but Johns Hopkins is hoping all this will be curative, so will stay the course. Side effects of the SRT and ADT are what you would expect: lots of hot flashes, mild incontinence, total impotence, occasional light-headedness / dizzyness. I expect the incontinence to go away, hot flashes are irritating but tolerable. Gotta see what we can do about the impotence. All in all, I feel extremely fortunate.