Nice to join a community of fellow PCa survivors and their caregivers. I am a 77 year old retired UCC minister and college professor now living in Florida following 30 years practicing my professions in Western Massachusetts. In 2002 , I was diagnosed with Stage 4 PC after a PSA of 24 and Gleason score of 8. I was told that I was not a candidate for surgery because of the high possibility of extra capsular penetration. So I retired and looked for the best radiation treatment, which I found in proton beam therapy at Loma Linda Medical Center. My treatment was augmented by EBRT and then I was advised to go on ADT for 24 months. I chose instead to do Intermittent Androgen Blockade therapy using Zoladex and Casodex. That enabled me to keep the cancer at bay for a long time while enjoying life traveling, writing and doing volunteer work. A few months ago, I reached CRPC so I am now at a crossroads. Since I am not metastasized as shown by the negative results of my recent whole body scan ordered by my oncologist, my only choice for further treatment appears to be Ketoconazole. I am negotiating with my oncologist on the level of dosage. I would like to be conservative with low dose ketoconazole (200 MG three times a day) but my oncologist says that level is useless. So I am doing a lot of research on possible side effects of a high dose (400 mg three times a day). To get myself ready, I am testing the health of my liver and starting detoxification through the right foods and supplements. I just want to buy as much time as I can because to me, quality of life is more important than longevity. Down the line, I may accept Xtandi or Zytiga but I have definitely decided to refuse docetaxel chemotherapy or its various equivalents if and when that time comes. I am an active member of Compassion and Choices and praying that Florida will follow the lead of other states in allowing terminal patients to die with dignity. Read my autobiographical book "When God Calls" by googling me or the book title at Amazon or Barnes and Noble. Write me if you want personalized autographed copies.
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