I was diagnosed January 20, 2014. My gleason was 9 (4+5). I had a prostatectomy in March, 2014. Unfortunately PSA didn't drop much. I decided to get colonoscopy which showed prostate cancer on my rectum. I had a prostate cancer specific contrast agent and PET scan developed at JH which showed cancer was localized in the rectum. I had RT at Johns Hopkins. I then chose "off label" Provenge treatment. Meanwhile, before RT I started Lupron and Casodex. Now I take Trelstar which is every 6 months. Continece good until about 9 months ago. Light bouts with proctitis. Resolved by taking fiber. Just had male sling procedure at JH and continence issues 100% resolved. PSA is now .02 and steady. I am coming off hormone therapy in April. We'll see what happens.
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