I never had high PSA. My PC was discovered by accident (in 2014) when I was being treated for excessive nightly urination. A biopsy showed all areas of my prostate to contain high Gleason (9) PC. The biopsy also showed that the cancer cells were highly deformed and produced only low levels of PSA. ADT (degarilex) and radiation (brachytherapy and external beam) controlled everything for a while but in fall of 2016 the cancer spread through the lymph system to bones, lungs, and liver. I am now on chemotherapy (doxitaxil and carboplatin) along with ADT. Dr. believes that the immediate problem is controlling the progression in the liver which biopsy shows has the same characteristics as the cancer in the prostate. Next CT scan is next week (March 2016) after which i should know if the treatment is working. Dr. also says that these treatments should work until they don't work, which does not give me a good feeling. Apparently the cancer in the liver is also very dispersed so surgery or direct chemo would not work there.
I am particularly interested in what works to control low PSA cancer cells, and how to treat prostate cancer which has spread to the liver.