I was diagnosed at 56 in 2012. PSA 8.0 Initial biopsy showed positive cores with Glesason 3 + 4. Sent biopsy to Johns Hopkins which read it 4 +5. Went to MD Anderson. Evaluated treatment options and third read was 3 +4. CT showed one pelvic lymph node was slightly enlarged,but not enough to be considered a concern. Decided to do Proton radiation plus 6 months lupron and 30 days casodex. PSa dropped to <.05. Stayed at that level until March 2015, when it jumped to 2.5. Doctors decided to re-test in 6 months in that may have been post treat spike. Returned in Sept 2015 and PSa was at 28. Chemical Failure of treatment, so it seemed the Johns Hopkins read coupled with the slightly enlarged lymph node were indications cancer was likely already out of prostate bed. Started in November on Degarelix (Firmagon) - Psa at 38. Currently PSa at 0.7.other than a little fatigue, lack of libido and minor sweating no other side effects of note. Also engaged in Clinical of Cabozantinib to see if it prevents further cell migration. Started at 60 mg, which side effects were horrible. Reduced to 40 mg which now makes things tolerable, some minor joint pain and a little increased lethargy. I continue to run my Commercial cleaning business and have moved to a more Mediterranean diet which i think helps a lot. And i pray a lot!
I haven't seen any posts on Degarelix in place of Lupro/Casodex.anyone else on that therapy and what are you experiencing? Thanks and blessings to all - Steve