Help Understanding My Dad's Biopsy Sc... - Advanced Prostate...

Advanced Prostate Cancer

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Help Understanding My Dad's Biopsy Scores

SKKALH528 profile image
15 Replies

Hi everyone,

My dad, 72, was recently diagnosed with prostate cancer (PSA 150) my family is devastated and trying to navigate this new world. My dad received the following Biopsy scores a few weeks ago and since then he started bicalutamide (6/25) and had his first Lupron shot (7/10). And we are currently awaiting results from his PSMA PET scan.

Based on the following Biopsy scores, what do you think is next?

Thank you in advance for your comments/advice/support, I've already learned so much from this forum.

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SKKALH528 profile image
SKKALH528
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15 Replies
witantric profile image
witantric

That biopsy shows pretty aggressive cancer. I think the standard of care is triplet therapy. Tall_Allen can comment more. How is his health in general?

SKKALH528 profile image
SKKALH528 in reply towitantric

He is in great shape, he walks on average about 5 miles/day and has good muscle tone for his age. No other known health issues.

Tall_Allen profile image
Tall_Allen

So far, we only know that there is high grade cancer within the prostate. As of today, we don't know if his cancer is early stage or advanced. It is impossible to say what the next steps would be without the results of the PSMA PET. Please let us know when you get those results.

Meanwhile, you may find these useful:

nccn.org/patients/guideline...

nccn.org/patients/guideline...

SKKALH528 profile image
SKKALH528 in reply toTall_Allen

Thanks Tall_Allen , I appreciate the resources! I will follow-up next week once we've received the results of the PSMA PET scan

witantric profile image
witantric in reply toTall_Allen

Listen to Tall_Allen. My recommendation of triplet therapy presumed that PSMA-PET Scan shows no spread. Good luck and god speed.

Tall_Allen profile image
Tall_Allen in reply towitantric

You probably meant that triplet is only given if it has spread to distant sites.

Mike58 profile image
Mike58

First of all DON'T panic.

That is the most common thing men and their family's do when they hear the word "Cancer"

They (we have all been there) - PANIC

This is Prostate Cancer not Lung or Pancreatic Cancer. And while I'm not trying to say that this type of cancer is nothing to be concerned about, what I do want to say is, - take a deep breath because in the majority of cases, being diagnosed with Prostate Cancer is the commencement of a journey.

It is like your in a car travelling along the road and way up in the distance you can see a massive cliff drop (PC) that the road is heading towards. It's in the distance and so you have the time to work out what evasive action you will take before you reach that point, if ever you do. Its not like you have left the road and right in front of you is a massive tree that you are about to hit! Thats "generally "not how PC works.

Now then, there are wonderful people on this forum who will give you great answers to your questions, they have helped me in many ways and they will help you. I'm just putting my pennies worth in because Quality of Life is so important and sadly Panic and Fear are 2 of the most horrible things that will wreck your QOL.

So push those things out of your mind, and start planning on how you will beat this disease and how you will enjoy the best QOL possible even while on this treatment journey you are about to take.

Breathe deeply, smile and all the best to you all.

babychi profile image
babychi

Our Oncologist told us buddy could get run over, die in a plane crash, die of a stroke or heart attack etc. etc. Do not panic he said!

Many men die with this cancer, not from it. Be patient and research each step. We are 7 year survivors and travel the planet. Never give up, never give in. Treatments are improving every day. It is not a death sentence.💜

Derf4223 profile image
Derf4223

When I was diagnosed and didn't know the specifics, sure as heck it was stressful but my dad and uncles all had PCa and I knew it was the beginning of the rest of my life. If your dad wants to make the most of his, I suggest he control what he can control and not try to out-guess his doctors. Exercise and diet for starters -- there is much about both subjects on the interweb and on this site. Also -- he should get a bone density scan soonest. The exercise part is essential, and I am not talking just walking here. Resistance, cardio and aerobics in fairly large regular quantities. The more the merrier. Good luck.

Conlig1940 profile image
Conlig1940

There are many otheer treatments other than "Triple Treatments " -- Have you eliminated Focal Therapies . -It sounds to me you should be educating yourself REAL FAST .

I TOTALLY AGREE - DO NOT PANIC & MAKE A SUDDEN "WRONG " KNEE JERK DECISION WHICH YOU MAY REGRET FOR THE REST OF YOUR LIFE .

# 1 I would have a 2nd Opinion of my Pathology report to confirm the Gleason Score .

# 2 Purchase Dr Patrick Walsh's 5th Edition book " Guide to surviving Prostate Cancer " which willl educate your about ; Testing for cancer . What do the Gleason Scores mean , Other tests after your biopsy ( Liquiid Biopsies also called Biomarkers ) , Treatment options and their pluses and minuses . I.E Side effects , short & long term etc .

Reading this book will give you an accelerated education in prostate cancer and equip you to ask the right questions going forward plus in making the right treatment decision for YOUR case .

Finally . After meeting with your Urologist , Radiation Oncoligst or other members of your Tumor Board . Again I always seek out a 2nd or 3rd opinion before making a decision .

Just like . You never take the 1st and only quote ( price ) to paint your house or do other home maintenance or upgrade work .

THIS IS YOUR HEALTH -- YOU TAKE CONTROL .

j-o-h-n profile image
j-o-h-n

He's 72 years old and probably will make it to 90 (or more). So you have 18 years (or plus) to enjoy your years together. So enjoy them.......... and try to laugh.....

Good Luck, Good Health and Good Humor.

j-o-h-n

JRLDH profile image
JRLDH

At the risk of being a downer. While I don't think that uplifting comments are wrong, the biopsy and PSA info doesn't look like one of those indolent prostate cancers that give it the "oh it's harmless, most men die with it not from it" reputation.

The numbers look *bad* and I wouldn't treat it as a harmless cancer. Yes, you shouldn't panic but also please don't underestimate it. The data that you posted has all the hallmarks of aggressive disease (high volume, high PSA, high grade) so that's most likely not an easy-peasy run of the mill prostate cancer but a beast.

SKKALH528 profile image
SKKALH528

Hi all - we received my dad's psma pet scan results today. Looks like 4 bony mets were found, however no spread to the lymph nodes. Not sure what to make of the rest. What does the SUV Score tell us? Any help is appreciated

Tall_Allen , tagging you since I said I would keep you updated!

Psma pet scan results
SKKALH528 profile image
SKKALH528

Pt 2 of his psma pet scan results

Pet scan pt 2
SKKALH528 profile image
SKKALH528

Pt 3 of his psma pet scan

Pt 3 of psma pet scan

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