Posts - Acoustic Neuroma Support | HealthUnlocked

Acoustic Neuroma Support

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Making changes at work.

Hi All, I’m just looking for any of your experience in changing roles at work to accommodate your AN. I’m on watch and wait with my first year scan...

Hi All, I’m just looking for any of your experience in changing roles at work ...

DH32

•17 days ago

7 Replies

How long after gamma knife will i see any changes to my AN ?

Hi, i had gamma knife sept 23 and I've just had a scan sept 24. I do have a telephone appointment with my consultant early november and i have to admit i'm...

Hi, i had gamma knife sept 23 and I've just had a scan sept 24. I do have a tel...

Cwk123

•29 days ago

7 Replies

Fed up?

Is there anyone out there who is fed up with watch and wait? I’m considered to have a small tumour but have symptoms, such as hearing loss and persistent...

Is there anyone out there who is fed up with watch and wait? I’m considered to h...

DellyAves

•30 days ago

4 Replies

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The strangest news ever

Yea had my appointment last week with my AN specialist assistant to get the most unusual news I have ever heard, they started off my going through how long ago...

Yea had my appointment last week with my AN specialist assistant to get the most...

Ga131078

•1 month ago

7 Replies

Waking up from AN Surgery

The wait is almost over—my surgery is in two days. I know it will be long. This will be the first time ever I am going through any surgery. Just wondering...

The wait is almost over—my surgery is in two days. I know it will be long. This...

Ursus_thibetanus

•1 month ago

5 Replies

Driving

How long does it take to return to driving after acoustic neuroma surgery? Any personal experiences?

How long does it take to return to driving after acoustic neuroma surgery? Any p...

Ursus_thibetanus

•2 months ago

9 Replies

Residual tumour regrowth

Hi there, I had surgery in 2021 to remove a large AN. My follow-up MRI scans showed that all was well--until the last one, which shows regrowth. It's slight...

Hi there, I had surgery in 2021 to remove a large AN. My follow-up MRI scans sho...

sunshineandfrost

•2 months ago

8 Replies

Cyst on AN

Anyone else with experience of a cyst on an AN?We're doing as much research as possible before our appointment this Tuesday Thank you!

Anyone else with experience of a cyst on an AN?We're doing as much research as p...

StrugglingSpouse

•2 months ago

7 Replies

Gentamicin Injections

I took my first gentamicin injection last Wednesday and will have two more over the next two weeks. My doctor mentioned that I will feel wobbly after these...

I took my first gentamicin injection last Wednesday and will have two more over ...

Ursus_thibetanus

•2 months ago

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Hearing loss

My upcoming AN surgery will result in permanent hearing loss in my left ear. What is the experience of living with hearing in only one ear, and has anyone had...

My upcoming AN surgery will result in permanent hearing loss in my left ear. Wha...

Ursus_thibetanus

•2 months ago

10 Replies

Diagnosed with a Large AN (4.6 cm)

I have been diagnosed with a large acoustic neuroma (4.6 cm), and unfortunately, surgery is the only option for a tumor of this size. Although I don’t...

I have been diagnosed with a large acoustic neuroma (4.6 cm), and unfortunately,...

Ursus_thibetanus

•2 months ago

9 Replies

Cyst growing on what's left of the acoustic neuroma

Has anyone had a cyst growing? My husband was diagnosed with an acoustic neuroma 8 years ago, he had surgery 6 years ago, life has been living hell since. I...

Has anyone had a cyst growing? My husband was diagnosed with an acoustic neuroma...

StrugglingSpouse

•2 months ago

16 Replies

When should we worry about symptoms changing?

Hey everyone, first post here and I’m just curious about your thoughts before I bother my nurse. She has recommended this page in the past. Sorry it’s so long...

Hey everyone, first post here and I’m just curious about your thoughts before I ...

Anon30

•3 months ago

6 Replies

recently diagnosed with 3.5cm acoustic neuroma

Hello, I’m new here 😀 in July 2024, I was diagnosed with a 3.5cm Acoustic Neuroma after having some CT scans at the hospital. I noticed my hearing was going...

Hello, I’m new here 😀 in July 2024, I was diagnosed with a 3.5cm Acoustic Neuro...

Longtallsally22

•3 months ago

5 Replies

severe lack of motivation

having developed Trigeminal Neuralgia in 2023 from the impact of my AN, I started Carbamazepine in Dec 2023. Although this has reduced headaches considerably...

having developed Trigeminal Neuralgia in 2023 from the impact of my AN, I starte...

GGourmet

•5 months ago

3 Replies

Gamma Knife - Sedation?

Out of the blue last Friday I received a telephone appointment with my consultation (still haven't seen him face to face) and told the 3rd scan in a row has...

Out of the blue last Friday I received a telephone appointment with my consultat...

JDN57

•6 months ago

5 Replies

How often do you have MRI scans?

I was diagnosed with a 5mm acoustic neuroma a year ago after having chronic migraine and several other neurological symptoms for a few years. A month ago, I...

I was diagnosed with a 5mm acoustic neuroma a year ago after having chronic migr...

Lemon00

•6 months ago

5 Replies

facial palsy leaving ptosis

I wrote facial palsy as on side face dropped followed by weakness and multitude of symptoms. bells was ruled out after twice treatment but weak brow muscle and...

I wrote facial palsy as on side face dropped followed by weakness and multitude ...

stiff19

•6 months ago

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Sonitus soundbite

Hi all, Has anyone had any experience of using the Soundbite device to address hearing loss in one ear after acoustic neuroma surgery? Just looking at options...

Hi all, Has anyone had any experience of using the Soundbite device to address ...

domforr

•6 months ago

7 Replies

Painful symptoms

hi can I ask at what point do you think this isn’t something to just live with? My headache is constant , hearing almost completely gone, swallowing unusual...

hi can I ask at what point do you think this isn’t something to just live with? ...

Zobo47

•7 months ago

3 Replies

1st post

Hi , 1st post! symptoms since August 23. Face numbness , hearing loss , eye blur , balance and swallowing issues. It’s take 8 months to speak to a neurologist...

Hi , 1st post! symptoms since August 23. Face numbness , hearing loss , eye blu...

Zobo47

•7 months ago

3 Replies

Newbie

Hi all, I am new to the journey of AN. I have had trouble with one sided deafness, facial droop, double vision, voice and swallow for 2.5 yrs. To start with...

Hi all, I am new to the journey of AN. I have had trouble with one sided deaf...

Ion1

•7 months ago

1 Reply

Upcoming hospital appointment

I was diagnosed with a 25mm AN last October. It totally came out of the blue. I'd been suffering from Long Covid for over a year and I started to have...

I was diagnosed with a 25mm AN last October. It totally came out of the blue. I'...

EssEmBee

•7 months ago

4 Replies

Surgery or radiotheraphy?

Hi, I writing this post on behalf if my husband who is 41 and was diagnosed with an acoustic neuroma in January. He has been referred to The Queen Elizabeth...

Hi, I writing this post on behalf if my husband who is 41 and was diagnosed wit...

Zhad

•7 months ago

19 Replies

mri 3t scan next week, I’m claustrophobic

so worried, I hate enclosed spaces, lying flat and loud noises - how am I going to cope? My mind has gone into overdrive. I’m considering getting diazepam...

so worried, I hate enclosed spaces, lying flat and loud noises - how am I going ...

Gillypop

•7 months ago

8 Replies

Just been told…I have a Brain Tumour

So Im 56 and last week I was told by my Oncologist that after an 8mth horrific battle with T4 tonsil cancer ( which had spread into 7 lymph nodes base of...

So Im 56 and last week I was told by my Oncologist that after an 8mth horrific ...

EllieMay7

•8 months ago

13 Replies

I am experiencing pins and needles in my lower arms and lower legs also bad cramp in my legs and my speech is stuttering .!

I have a small AN on watch and wait I have been feeling out of sorts headache, off balance, tinnitus louder than normal. But I’m experiencing pins and needles...

I have a small AN on watch and wait I have been feeling out of sorts headache, o...

Whitneyhouston

•8 months ago

2 Replies

2 acoustic neuromas

Morning everyone. Is there anyone out there who has 2 acoustic neuromas by chance ie not NFT2.? I have an AN on the left and another on the right. One on the...

Morning everyone. Is there anyone out there who has 2 acoustic neuromas by chan...

Operalovers

•8 months ago

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musician - hearing loss after surgery

Hi, I am a 49 year old musician and I was diagnosed with an Acoustic Neuroma in December 2023 and had to have surgery a few weeks later due to the size of the...

Hi, I am a 49 year old musician and I was diagnosed with an Acoustic Neuroma in ...

domforr

•8 months ago

11 Replies

Possible AN with eye pain

Hi all. I have been diagnosed with a possible AN or Schwannoma after an MRI in November 23. I am due a second scan in April to see if a very small...

Hi all. I have been diagnosed with a possible AN or Schwannoma after an MRI i...

Loonywoman

•9 months ago

6 Replies

Write a post or ask a question

Posts - Acoustic Neuroma Support | HealthUnlocked

Acoustic Neuroma Support

Making changes at work.

How long after gamma knife will i see any changes to my AN ?

Fed up?

The strangest news ever

Waking up from AN Surgery

Driving

Residual tumour regrowth

Cyst on AN

Gentamicin Injections

Hearing loss

Diagnosed with a Large AN (4.6 cm)

Cyst growing on what's left of the acoustic neuroma

When should we worry about symptoms changing?

recently diagnosed with 3.5cm acoustic neuroma

severe lack of motivation

Gamma Knife - Sedation?

How often do you have MRI scans?

facial palsy leaving ptosis

Sonitus soundbite

Painful symptoms

1st post

Newbie

Upcoming hospital appointment

Surgery or radiotheraphy?

mri 3t scan next week, I’m claustrophobic

Just been told…I have a Brain Tumour

I am experiencing pins and needles in my lower arms and lower legs also bad cramp in my legs and my speech is stuttering .!

2 acoustic neuromas

musician - hearing loss after surgery

Possible AN with eye pain

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