Posts - Acoustic Neuroma Support | HealthUnlocked

Acoustic Neuroma Support

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Friend has acoustic neuroma

My daughter-in-law's mother was diagnosed with acoustic neuroma 3 years ago. They told her that her symptoms would probably go away in about a year. I do think...

My daughter-in-law's mother was diagnosed with acoustic neuroma 3 years ago. The...

emmasmudge

•6 hours ago

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watch and wait

I’ve just been diagnosed with AN and am now waiting for my local hospital’s neurologist team to contact me. My AN is pea sized and I am suffering moderate...

I’ve just been diagnosed with AN and am now waiting for my local hospital’s neur...

Chocchomp

•3 days ago

13 Replies

waiting for mri results

After my initial referral to ENT for tinnitus and severe single sided hearing loss in April I finally got an appointment at the beginning of December. The...

After my initial referral to ENT for tinnitus and severe single sided hearing lo...

SharonR82

•5 days ago

7 Replies

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memory loss from Carbamazepine.

I wanted to share a recent change in my medication for Trigeminal Neuralgia caused by the Acoustic Neuroma. I was on Carbamazepine for around 9 months or more...

I wanted to share a recent change in my medication for Trigeminal Neuralgia caus...

GGourmet

•12 days ago

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Insurance

Hi Guys am looking for Holiday Insurance Company that gives Fair Price's, Taking my missus away to Turkey for her Birthday in March and as you all know it is...

Hi Guys am looking for Holiday Insurance Company that gives Fair Price's, Taking...

Ga131078

•1 month ago

9 Replies

Mariapia66

I was diagnoised an Acustic Neroma last year after suffering hearing lose in my right ear. I have been having regular MRIs to check the growth my last one has...

I was diagnoised an Acustic Neroma last year after suffering hearing lose in my ...

mariapia66

•1 month ago

28 Replies

A little good news.

Hi all, I’ve just had my scan results from my first scan since diagnosis and there has been no change in size or appearance of my small AN. As I was really...

Hi all, I’ve just had my scan results from my first scan since diagnosis and t...

DH32

•2 months ago

2 Replies

Numbness in chin/ mouth / jaw area.

Hello everyone, I have a AN and I am on a watch and wait. 2 days ago I got this numbness on the same side as AN. I would describe it as the feeling you get...

Hello everyone, I have a AN and I am on a watch and wait. 2 days ago I got this...

Reddington__

•2 months ago

4 Replies

Support Line closed over the Christmas period

Our Support Line will be closed over the Christmas period, from 2pm on Tuesday the 24th of December. Our Support Team will be back from 9am on Thursday the 2nd...

Our Support Line will be closed over the Christmas period, from 2pm on Tuesday t...

Zhaleh_TBTC

Administrator•2 months ago

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Help please

Hi I had accoustic neuroma removed in 2023 but since am still deaf in 1 ear and headaches,spasms and tiredness are debilitating.I have 2x children 1 with...

Hi I had accoustic neuroma removed in 2023 but since am still deaf in 1 ear and ...

TomandJerry2

•3 months ago

6 Replies

A day in the ED

I don’t know if this will sound familiar to anyone but I recently spent a day in the ED of my local hospital because since Tuesday 26th I’ve been having...

I don’t know if this will sound familiar to anyone but I recently spent a day in...

NoFurtherAction

•3 months ago

10 Replies

Making changes at work.

Hi All, I’m just looking for any of your experience in changing roles at work to accommodate your AN. I’m on watch and wait with my first year scan...

Hi All, I’m just looking for any of your experience in changing roles at work ...

DH32

•4 months ago

7 Replies

How long after gamma knife will i see any changes to my AN ?

Hi, i had gamma knife sept 23 and I've just had a scan sept 24. I do have a telephone appointment with my consultant early november and i have to admit i'm...

Hi, i had gamma knife sept 23 and I've just had a scan sept 24. I do have a tel...

Cwk123

•4 months ago

7 Replies

Fed up?

Is there anyone out there who is fed up with watch and wait? I’m considered to have a small tumour but have symptoms, such as hearing loss and persistent...

Is there anyone out there who is fed up with watch and wait? I’m considered to h...

DellyAves

•4 months ago

4 Replies

The strangest news ever

Yea had my appointment last week with my AN specialist assistant to get the most unusual news I have ever heard, they started off my going through how long ago...

Yea had my appointment last week with my AN specialist assistant to get the most...

Ga131078

•4 months ago

7 Replies

Waking up from AN Surgery

The wait is almost over—my surgery is in two days. I know it will be long. This will be the first time ever I am going through any surgery. Just wondering...

The wait is almost over—my surgery is in two days. I know it will be long. This...

Ursus_thibetanus

•4 months ago

5 Replies

Driving

How long does it take to return to driving after acoustic neuroma surgery? Any personal experiences?

How long does it take to return to driving after acoustic neuroma surgery? Any p...

Ursus_thibetanus

•5 months ago

11 Replies

Residual tumour regrowth

Hi there, I had surgery in 2021 to remove a large AN. My follow-up MRI scans showed that all was well--until the last one, which shows regrowth. It's slight...

Hi there, I had surgery in 2021 to remove a large AN. My follow-up MRI scans sho...

sunshineandfrost

•5 months ago

8 Replies

Cyst on AN

Anyone else with experience of a cyst on an AN?We're doing as much research as possible before our appointment this Tuesday Thank you!

Anyone else with experience of a cyst on an AN?We're doing as much research as p...

StrugglingSpouse

•5 months ago

7 Replies

Gentamicin Injections

I took my first gentamicin injection last Wednesday and will have two more over the next two weeks. My doctor mentioned that I will feel wobbly after these...

I took my first gentamicin injection last Wednesday and will have two more over ...

Ursus_thibetanus

•5 months ago

Be the first to reply

Hearing loss

My upcoming AN surgery will result in permanent hearing loss in my left ear. What is the experience of living with hearing in only one ear, and has anyone had...

My upcoming AN surgery will result in permanent hearing loss in my left ear. Wha...

Ursus_thibetanus

•5 months ago

10 Replies

Diagnosed with a Large AN (4.6 cm)

I have been diagnosed with a large acoustic neuroma (4.6 cm), and unfortunately, surgery is the only option for a tumor of this size. Although I don’t...

I have been diagnosed with a large acoustic neuroma (4.6 cm), and unfortunately,...

Ursus_thibetanus

•5 months ago

9 Replies

Cyst growing on what's left of the acoustic neuroma

Has anyone had a cyst growing? My husband was diagnosed with an acoustic neuroma 8 years ago, he had surgery 6 years ago, life has been living hell since. I...

Has anyone had a cyst growing? My husband was diagnosed with an acoustic neuroma...

StrugglingSpouse

•5 months ago

16 Replies

When should we worry about symptoms changing?

Hey everyone, first post here and I’m just curious about your thoughts before I bother my nurse. She has recommended this page in the past. Sorry it’s so long...

Hey everyone, first post here and I’m just curious about your thoughts before I ...

Anon30

•6 months ago

6 Replies

recently diagnosed with 3.5cm acoustic neuroma

Hello, I’m new here 😀 in July 2024, I was diagnosed with a 3.5cm Acoustic Neuroma after having some CT scans at the hospital. I noticed my hearing was going...

Hello, I’m new here 😀 in July 2024, I was diagnosed with a 3.5cm Acoustic Neuro...

Longtallsally22

•7 months ago

5 Replies

severe lack of motivation

having developed Trigeminal Neuralgia in 2023 from the impact of my AN, I started Carbamazepine in Dec 2023. Although this has reduced headaches considerably...

having developed Trigeminal Neuralgia in 2023 from the impact of my AN, I starte...

GGourmet

•8 months ago

3 Replies

Gamma Knife - Sedation?

Out of the blue last Friday I received a telephone appointment with my consultation (still haven't seen him face to face) and told the 3rd scan in a row has...

Out of the blue last Friday I received a telephone appointment with my consultat...

JDN57

•9 months ago

5 Replies

How often do you have MRI scans?

I was diagnosed with a 5mm acoustic neuroma a year ago after having chronic migraine and several other neurological symptoms for a few years. A month ago, I...

I was diagnosed with a 5mm acoustic neuroma a year ago after having chronic migr...

Lemon00

•9 months ago

5 Replies

facial palsy leaving ptosis

I wrote facial palsy as on side face dropped followed by weakness and multitude of symptoms. bells was ruled out after twice treatment but weak brow muscle and...

I wrote facial palsy as on side face dropped followed by weakness and multitude ...

stiff19

•9 months ago

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Sonitus soundbite

Hi all, Has anyone had any experience of using the Soundbite device to address hearing loss in one ear after acoustic neuroma surgery? Just looking at options...

Hi all, Has anyone had any experience of using the Soundbite device to address ...

domforr

•9 months ago

7 Replies

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Posts - Acoustic Neuroma Support | HealthUnlocked

Acoustic Neuroma Support

Friend has acoustic neuroma

watch and wait

waiting for mri results

memory loss from Carbamazepine.

Insurance

Mariapia66

A little good news.

Numbness in chin/ mouth / jaw area.

Support Line closed over the Christmas period

Help please

A day in the ED

Making changes at work.

How long after gamma knife will i see any changes to my AN ?

Fed up?

The strangest news ever

Waking up from AN Surgery

Driving

Residual tumour regrowth

Cyst on AN

Gentamicin Injections

Hearing loss

Diagnosed with a Large AN (4.6 cm)

Cyst growing on what's left of the acoustic neuroma

When should we worry about symptoms changing?

recently diagnosed with 3.5cm acoustic neuroma

severe lack of motivation

Gamma Knife - Sedation?

How often do you have MRI scans?

facial palsy leaving ptosis

Sonitus soundbite

Search posts

Pinned Posts

Latest poll

How were you told about your/your loved ones brain tumour diagnosis?

Archive