Posts - Acoustic Neuroma Support | HealthUnlocked

Acoustic Neuroma Support

2,741 members•926 posts

All posts for January 2023

Just a quick update

My symptoms have worsened, and I am now in hospital waiting for an operation in the morning. I have more fluid on the brain so have to have to hVe a shunt put...

My symptoms have worsened, and I am now in hospital waiting for an operation in ...

•2 years ago

Hearing Aids

Hi guys wondered if anyone had any advice on hearing aids. I have an AN, had gamma knife in 2021, doing ok but hearing pretty much gone on affected side....

Hi guys wondered if anyone had any advice on hearing aids. I have an AN, had gam...

•2 years ago

AN Sideffects

Morning, It’s six months since my Radiotherapy and I have the following side effects hanging around I wonder if you can help with your experiences if they...

Morning, It’s six months since my Radiotherapy and I have the following side eff...

•2 years ago

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introduction

Hi All Just a quick introduction and saying helllo My Name is Rob I’m approaching my 60th birthday at the end of February and live in North Nottinghamshire...

Hi All Just a quick introduction and saying helllo My Name is Rob I’m approac...

•2 years ago

13 Year Old, 8cm AN

Hi all, thought I’d share my story. I was suddenly diagnosed with a 8cm AN when I was 13. I was experiencing a few symptoms, dizziness, nausea when going...

Hi all, thought I’d share my story. I was suddenly diagnosed with a 8cm AN whe...

•2 years ago

Waiting game!

Hearing loss and first hearing aid in 2018 following an ear infection and a perforated ear drum in 2014. I had a re assessment in 2022 where it was determined...

Hearing loss and first hearing aid in 2018 following an ear infection and a perf...

Itsallabitcrazy

•2 years ago

New AN diagnosis

Had the contract MRI this week now waiting to hear back . First MRI in Nov22 said it was 10mm not sure what the contract MRI will show ? or what to expect next...

Had the contract MRI this week now waiting to hear back . First MRI in Nov22 sai...

•2 years ago

Deteriorating hearing but no change to AN following contrast MRI

Has anyone experienced further hearing loss and several tinnitus sounds in same ear? I have had no chandpge in AN for 6 months so on watch and wait but finding...

Has anyone experienced further hearing loss and several tinnitus sounds in same ...

•2 years ago

Had my Ent appointment

Hi everyone, I thought I would give a quick update as so many of you kindly responded to my previous post about my sudden hearing loss. I just got home...

Hi everyone, I thought I would give a quick update as so many of you kindly re...

•2 years ago

Probable AN

Hi, having had symptoms for over a year, an MRI in September I now have to have another MRI with contrast. Waiting, waiting for an appointment is really having...

Hi, having had symptoms for over a year, an MRI in September I now have to have ...

•2 years ago

Annual MRI scan for AN after surgery

Hi all, 2 weeks ago i had my 2nd MRI scan to check on signs of any tumour regrowth since my surgery Aug 21. I thought i would receive my results via letter but...

Hi all, 2 weeks ago i had my 2nd MRI scan to check on signs of any tumour regrow...

•2 years ago

Where next?

Hi all, I have been undergoing investigation for six months for symptoms that started July 2020, but got significantly worse June 2022. Started with soreness...

Hi all, I have been undergoing investigation for six months for symptoms that st...

•2 years ago

New old boy

I have a intracanalicular vestibular schwannoma, more commonly know as an AN :) I am in the monitoring process of annual MRI scans. The tumour grew 2mm last...

I have a intracanalicular vestibular schwannoma, more commonly know as an AN :) ...

•2 years ago

Acoustic Neuroma Support

Hi I have neuroma from a neck .Please someone share an opinion, my vision is blurry, I'm tired and my nose is stuffy, can someone tell me if he had an...

Hi I have neuroma from a neck .Please someone share an opinion, my vision is bl...

•2 years ago

MRI result

After many months waiting for a consultant appt then waiting again for an MRI and again waiting for the results (2 years in total ) I am pleased to report I...

After many months waiting for a consultant appt then waiting again for an MRI an...

•2 years ago