Cyst on AN

[StrugglingSpouse]

Anyone else with experience of a cyst on an AN?We're doing as much research as possible before our appointment this Tuesday

Thank you!

[FERNBROOK]

I had a cystic AN. It just spontaneously happens and can cause rapid growth. I was advised surgery was the best option to first decompress the cyst by slicing it and then removing the remaining tumour. Radiotherapy would have exacerbated the cystic component with its typical swelling reaction with this type of intervention..so surgery it was.

[StrugglingSpouse in reply to FERNBROOK]

Thank you very much for sharing!

[Robbo2023]

With the benefit of hindsight with AN cyst regularly have scans every 3 months in my opinion.

[StrugglingSpouse in reply to Robbo2023]

Weve been doing this. And what treatment is effective?

[Robbo2023]

It depends on the quality of the schwannoma there is the surgical route or the non surgical route, factor in the quality of life.

[louise60693]

Hello, my AN was cystic so I couldn't have SRS but had successful operation 3 years ago and doing OK hope this is helpful

[StrugglingSpouse]

We did the surgery option on October 7th, had a good experience, it was then followed by an infection which made it a harder experience, but hoping there's no more drama left now and we'll be able to do recovery peacefully at home now

Thanks everyone for your support and for being a good and understanding place to share again