Posts - Acoustic Neuroma Support | HealthUnlocked

Acoustic Neuroma Support

2,742 members•927 posts

All posts for November 2021

Intermittent weird dull and occasional shooting pain behind ear

Hello all! Quick question, I’m on watch and wait for a 17mm AN, which other than causing deafness and screaming tinnitus, isn’t impacting too badly…. But I’ve...

Hello all! Quick question, I’m on watch and wait for a 17mm AN, which other than...

•3 years ago

Get free benefits and money advice

Partnering with Citizens Advice Rushmoor, our Benefits and Money Clinic helps people affected by a brain tumour access the financial support they're entitled...

Partnering with Citizens Advice Rushmoor, our Benefits and Money Clinic helps pe...

Volunteer•3 years ago

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Memory difficulties - everything you need to know

Many people can experience memory difficulties caused by a brain tumour or its treatment. To help you better understand the symptoms you may be experiencing,...

Many people can experience memory difficulties caused by a brain tumour or its t...

Volunteer•3 years ago

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Symptoms

Hello, I had AN removed in 2013, was getting checked every yearly and now every 2/3 years. I've been getting strange symptoms, thudding (not rhythmic) weird...

Hello, I had AN removed in 2013, was getting checked every yearly and now every ...

•3 years ago

Something interesting

My husband had his AN successfully removed about 8 years ago translab. At the time they found the AN, they also found a meningioma in a different location....

My husband had his AN successfully removed about 8 years ago translab. At the t...

•3 years ago

Hearing aids

I have a Neuroma with associated hearing loss, I am on a watch and wait rather than any treatment at the moment at St George’s. What are other folks thoughts...

I have a Neuroma with associated hearing loss, I am on a watch and wait rather t...

•3 years ago

Addenbrooke's - AN or not? That is the question.

After a sudden deterioration in my hearing I was referred to Addenbrooke's. They did a thorough hearing test after which I had an appointment with the...

After a sudden deterioration in my hearing I was referred to Addenbrooke's. The...

•3 years ago

Acoustic Neurinomas in Scotland

Hi all! Does anybody know how acoustic neurinomas are handled/treated in Scotland (what hospitals, what techniques are available), etc? I moved to Edinburgh...

Hi all! Does anybody know how acoustic neurinomas are handled/treated in Scotlan...

•3 years ago

Regrowth after gamma-knife?

Does anybody know what the re-growth probability is many years after stereotactic radiosurgery? I had treatment for an AN in 2013, which then decreased in size...

Does anybody know what the re-growth probability is many years after stereotacti...

•3 years ago

Post AN Surgery Follow-up

Had a post surgery MRI on Friday 11.12.21, and a second follow up with my neurosurgeon. Prior to surgery I suffered from facial numbness, tinnitis, fullness in...

Had a post surgery MRI on Friday 11.12.21, and a second follow up with my neuros...

•3 years ago

Travelling by public transport - everything you need to know

Living with a brain tumour may mean you become more reliant on public transport. To help you decide which mode of transport is best for you, we've put together...

Living with a brain tumour may mean you become more reliant on public transport....

Volunteer•3 years ago

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AN headache pain

I was diagnosed with a 2.2 cm AN in July. I have facial numbness all the time, a bit of hearing loss and some tinnitus, some pressure around my ear. I walk and...

I was diagnosed with a 2.2 cm AN in July. I have facial numbness all the time, a...

•3 years ago

How long between MRI and diagnoses of Acoustic Neuroma.

Hi I have had problems with dizziness and feeling off balance since I had covid in January this year, I also have tinnitus. I was diagnosed by a GP with...

Hi I have had problems with dizziness and feeling off balance since I had covid ...

•3 years ago

Sharing experiences

Hello thought I would just share my experience as it may be reassuring for some. I was diagnosed with a vestibular schwannoma (AN) by my local hospital then...

Hello thought I would just share my experience as it may be reassuring for some....

•3 years ago

Still confused

Thanks for replying folks, not long home from hospital appointment, they seem to think I have meniere's disease, have to go and see a specialist, in a week or...

Thanks for replying folks, not long home from hospital appointment, they seem to...

•3 years ago

Information and resources

Find out about everything from tumour types and treatments to support and managing day to day. Our animations, wellbeing packs, and education and employment...

Find out about everything from tumour types and treatments to support and managi...

Partner•3 years ago

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AN misdiagnosed?

Hi there, I was diagnosed back in March 2021 with an AN on my left side by an ENT at my local hospital following an MRI. I have some symptoms that align with...

Hi there, I was diagnosed back in March 2021 with an AN on my left side by an ...

•3 years ago

Diagnostic brain scans - what you need to know

Scans are used during diagnosis or monitoring your tumour during and after treatment. Here we take a look at what diagnostic scans are; what happens before,...

Scans are used during diagnosis or monitoring your tumour during and after treat...

Volunteer•3 years ago

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Radiotherapy recommended.. but I'm worried about the side effects

Hi. I have been told my tumour is now growing but slowly and radiotherapy has been recommended. I'm worried as they say that my right hand side of my face...

Hi. I have been told my tumour is now growing but slowly and radiotherapy has be...

•3 years ago

10 ways we can help - speak to our team

Our team is here to listen, support you and help with any information you need. Email us at support@thebraintumourcharity.org, call us on 0808 800 0004 or...

Our team is here to listen, support you and help with any information you need. ...

Volunteer•3 years ago

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