I don’t know if this will sound familiar to anyone but I recently spent a day in the ED of my local hospital because since Tuesday 26th I’ve been having terrible headaches, fatigue, bad vertigo, stiff neck, shooting pains in face/eye /jaw and now I’ve lost some sensation in my mouth, all on the side of the AN. This seems to have come on overnight but things have generally been getting worse over the last few weeks. This is an escalation.
However.. I had a bang on the forehead a couple of weeks ago and this has complicated matters. My scheduled 6 monthly MRI was due on Thursday which was also when I was told to go to A&E so I cancelled it for a CT scan on the advice of my GP, that didn’t show much that was conclusive, so I’m getting a MRI scan tomorrow. Thankfully though, it’ll be a same day result rather than the 20 weeks it normally takes to get the results. My last scan in May showed no further growth apparently, but I didn’t get a letter until October informing me of the ‘good news’ !
Has anyone here had an escalation of symptoms suddenly like this?
Many thanks
W
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I had a similar experience after being diagnosed with an AN two years previously; deafness in that ear was the only symptom. Treatment was "watch and wait." My experience was a sudden bout of vertigo (I had never had this before) to the extent that I could not get out of bed. My daughter took me to ER and they diagnosed vertigo and dispensed a med that did not help. The vertigo gradually disappeared but I have had dizziness and imbalance ever since. It is always there, in the background, worse when I am tired and weave like a drunk person. This occurred two and a half years ago; ENT thinks it is caused by the AN and the only treatment has been a couple of rounds of vestibular rehab. I suppose I have learned to live with the dizziness and am grateful the vertigo has not returned. I am 79 years old and feel that treatment with surgery is not an option. My understanding of gamma knife is that it would probably make my dizziness worse as the tumor swells after treatment.
Thank you for your reply whiteleye. The docs seemed to think that my new symptoms were associated with the bump on the head until I had the MRI yesterday and it showed growth, not much, but enough to be nudging the trigeminal nerve. I’m hoping the balance will right itself again enough for me to get on with life, as it is I’m in bed quite often at the moment. I’m currently considering getting some gamma knife- I expect the ENT consultant will suggest it now, but I also am worried about the possibility of further vertigo. It’s horrible and not easy to live with. Seems to be downplayed quite a bit by the medics but I’m hoping it will settle as it did for you. Thanks again, W
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Acoustic neuroma 22x14mm and 5 mm cyst in the cerebellum.
Newbie !
CT scan
