Fibroids - sick of bleeding constantly

[Tahahgajaga]

hello. Just thought I’d post on here because a couple of days ago, my GP asked me to call myself an ambulance due to heavy (heavy!) bleeding that I couldn’t stop. Just in case this informs or helps anyone or if anyone can share any similar experiences on anything that helped or treatment options.

This ridiculous bleeding had been occurring for days - it was a terrifying experience, with blood and clots pouring out of me. I had never been in an ambulance before. I’m still really upset and exhausted by everything that’s gone on.

I had the mirena in and it worked perfectly until October last year when I suddenly couldn’t feel the strings and suffered a random heavy period. Same again in November. December, I was flooding all over and NYE, my mirena fell out due to the force of the heavy blood loss. 2 January, I had to go home from work because I had again gushed blood all over.

I had a week’s break and then started to bleed again. This progressed to the point whereby I was taken in to hospital. They were kind enough to take me around the back of the hospital and I got straight in and onto the gynae ward for multiple tests.

Eventually, I was given the internal and external ultrasound whereby they found a massive fibroid (the consultant needed two hands to show me the size of it!) I was discharged with T acid and the pill (which I won’t take) and I will be referred for treatment options soon.

I have an appointment with a private gynaecologist on Monday (thank god my employer gives me private health care) and I plan on asking the consultant to take the entire lot out. The ideal solution for me would be a hysterectomy with ovaries in (i’m 42) because my womb has caused me nothing but pain and inconvenience my entire life.

I’ve been feeling really down (not like me) and hopeless this last few weeks I didn’t have any sleep for days, trapped in a cycle of getting up, getting changed, showering, cleaning my home of blood, getting back into bed and then it all starts over and over again. The blood loss has been immense, like a murder scene. I’m really fed up and feeling sorry for myself - I’ve been bleeding on and off for almost 3 weeks now and those gushes of blood are still scary.

The best thing I ever did was buy some maternity pads - these are truly amazing and allow me to get some sleep….if I gush bleed onto them, they absorb it straight away and I feel dry and comfort mostly.

My life is so restricted at the mo with all this bleeding :(xx one night I actually took my quilt and pillow into the bathroom and sat bleeding on the loo for hours.

😢

[wobblybee Administrator Pioneer]

I’m so sorry you have to endure this…it sounds absolutely awful. I sincerely hope this situation can be resolved asap..

[Tahahgajaga in reply to wobblybee]

Thank you so much

[BettyBoop1973]

praying for you! 🙏🏾🙏🏾🙏🏾🙏🏾

[Tahahgajaga in reply to BettyBoop1973]

Appreciated! Thank you so much!

[Sel24]

hey there, as soon as I saw this post I just wanted to give you a massive hug! I’m also 42 and this is my 2nd time of having fibroids. I totally relate to your like a murder scene 🤣.

It’s so painful. And the incessant waking up in the night…rushing to put on a pair of knickers before you bleed onto the carpet. Then realising it was too late and having to scrub at God knows what time in the morning. And doing all that whilst maintaining a full time job and a house (I don’t have kids) is exhausting. So feel proud of yourself. And I can’t tell you the relief you will feel when it’s done.

I am currently on the pill as it was the only way because I needed an iron transplant as I was losing so much blood.

I’m getting a myomectomy which is just the removal of the fibroids for now. I have no idea why I don’t want a hysterectomy just yet. It just didn’t feel right.

I guess I just wanted you to know you are not alone. And I hope you get your operation as soon as possible. At least you don’t have the nhs wait.

Take care of yourself xx

[Tahahgajaga in reply to Sel24]

Thank you so much for replying. I’m in a slightly better place, having had some time to process everything that went on! Your message is much appreciated, it really is good to know I’m not alone, although I wouldn’t wish this on anyone else! Your clean up operation is just exhausting isn’t it? Very similar to mine - it’s crazy how this blood can get everywhere - it is truly a horrid situation to be in.

Please may I ask what pill you were issued and if you have any side effects? I’m glad you’ve got a plan for some treatment. I didn’t have kids myself - I find it a challenge to work full time and manage a home with this fibroid! I have been thinking about ladies who have children and just how awful this must be for them to manage whilst also caring for kids

I completely understand ladies not wishing to explore a hysterectomy……..myself, I hope I get one approved…..I hate living like this!

Thank you so much again - huge hugs xx

[Sel24 in reply to Tahahgajaga]

hello!

Well when I read your message it just resonated so much to me as I don’t know anyone who has really gone through the same. Sure heavy periods but not like where you do feel like you didn’t even know you had that much blood!

Plus going to the hospital and everything shows the severity of what you are going through. I think because you continue to work and maintain a “life” a lot of people don’t understand what’s going on. I remember bleeding on my work chair. It was so mortifying trying to scrub before anyone came in.

So I don’t know if you have ever been on the pill. I went on it when I was young but then most of them had huge side effects on me. It’s only because I had no other solution that I went on this one. But I have challenged when they don’t fit for me. Here’s my little reviews 😳 - I did try another one (all combi pills) and it was like I was PMSing all the time but no bleeding. But I got severe anger, eating and I would cry at any dog advert 🙄

1) cerrelle - didn’t stop the bleeding but was like a “normal” period

2) microgynam - horrific - would wake up in the night with suicidal thoughts

3) Cimiezt - the best one so far. No mood swings actually stops bleeding and doesn’t impact bowels or anything. I’m not sure if they do differing amounts of hormonal so if you want to know my dosage I can have a look for you.

Sorry for the essay but I wish sometimes people had told me about their journey. Like my male GP said to go on norethisterone but then when I saw a regular female GP she said it’s not great because it holds back the period but basically it comes back with what was held back and what you normally have so it’s not a great solution. The journey is very long.

I am glad you have steps in place that will hopefully give you your freedom. I actually winced at the size of yours. I have 3 they are - 7cm and 2 x 3cm.

Big hugs and love! You are doing amazing 😊😘xx

[HealthyMama12 in reply to Tahahgajaga]

I hope you understand that a hysterectomy is not really the end of your problems! It is the start of a whole new bunch of problems, because now you will experience early menopause, which is not a treat. Let me Tell ya! Please investigate this further look at all the angles because it seems like it’ll be the answer to your problems, but there could be more natural help with these things. There is a company called ancestral supplements that makes supplements that could help you…I can’t explain it here just go there and look for the female products and read the reviews, I know it’s hard to put up with all the bleeding & stuff. I slept with the plastic tablecloth under my matress for a long time after I had my second son because I was hemorrhaging and problems and that was before they make plastic mattress covers. 😳

Yarrow could help with your bleeding. Please read this.

natural-fertility-info.com/...

I wish you good health

[HealthyMama12 in reply to HealthyMama12]

hopkinsmedicine.org/news/ne...

[AGB111 in reply to Tahahgajaga]

Hi Tahahgajaga, I have gone through exactly the same thing in the past 2 years, the best thing I got was Norethisterone - Magic pills for me - life saver! I am now due a Hysterectomory and the whole horrific experience will be over.

Wishing you the best x

[Iloveunicorns1977]

Hi Tahahgajaga. I've just seen your post and wondered what treatment you went for in the end? I've also been diagnosed with a massive fibroid and am experiencing severe bleeding like a murder scene. I'm a teacher of teenage boys and constantly stressed at school thinking I might bleed over my work chair. It is so depressing. I have to go to the consultant on Wednesday. He prescribed me provera which didn't work. I'm thinking of asking for a hysterectomy. I'm 47 and in my family women have menopause young so I don't think it will affect when that happens much.