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PCOS UK (Verity)
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Newbie, looking for advice

Hi all,

I’ve come on here to hopefully find some answers or some guidance of what may be happening to me. I am 21 years of age and for most of my life struggled with my weight at my biggest I was 148kgs at the age of 18. I used to have a lot of irregular periods, excessive hair growth, heavy bleeding and severe pain before periods. When I was 18 I got gastric sleeve surgery and have now lost 84kgs, my periods became regular and the pain did reduce so I didn’t think much of it.

Two months ago I started getting serious pain in my right side, feeling nauseous constantly, constant cramping and was told by a GP to go to hospital as it was appendicitis. After waiting 7 hours in emergency and several blood tests I was sent home with no answers. For the next 2 weeks I was getting constant blood tests ultrasounds on my whole upper half with no results. They have now resulted it to IBS, I have been given medication to take for that with very minimal success.

What I did take note on my ultrasound notes was that my right ovary was bulky? And 2 20mm follicles found. Is this something to be concerned about?

It’s been two months and I have lost 13kilos due to nausea, the pain is still at the same stage and nothing seems to be improving.

I hope I can find some sort of understanding here as I am very lost.

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Ovary being bulky is pcos so nothing to worry about. I would ask to be checked for endometriosis as pain is more associated with that rather than pcos, it needs to be a laparoscopy to check it so there isnt a simple way of getting diagnosis. It is not uncommon to have endo and pcos either and sadly often they seem to believe pain is pcos but it isn't - have you been referred to an endocrinologist for pcos, if not ask to be as they specialise in both pcos and endo.

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I haven’t been directed anywhere all of my Gp’s have been telling me it’s IBS and to change diets.

I have an appointment with my gyno and hopefully can’t refer me from there.

Thank you so much for your advice I have no idea on any of this! So your help goes along way!

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Sadly they still put everything down to pcos which isnt always the case, you may need to push for a referral to an endo, a gynae is really fanny or fertility, an endo is the hormone imbalance which is what we have.

Good luck, take your Ma or a friend to your appointments so you have 2 pairs of ears and they wont be able to fob you off. Let me know how it goes.

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Thank you so much! Great advice I will keep you updated!

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