Anyone here who never started their periods?

I’m 32 and never had a natural period and didnt establish any periods at all as a teen.

I’ve been on and off the pill for years and my physical health declines in a scary way off the contraceptive pill.

This has all been brushed aside as ‘normal’ and blamed on PCOS but it feels like there’s something more going on here.

[Amiwrong]

my daughter has PCOS, not me, but she’s the same. Well, she’s 20yo and has been on the Pill since 2018 and she’s only ever had like a day or two of light bleeding each month, or even at all. She doesn’t mind this of course, but I worry because I don’t think it’s healthy. She does get major cramping and depressed moods a week or so prior though. Poor girl.

[Hidden in reply to Amiwrong]

Oh so she does have bleeding every month, it’s just sparse?

I get literally nothing at all. Ever. Which is what worries me.

I don’t suffer with cramps or depression but I do have horribly low blood pressure and hypoglycaemic episodes that worsen when I stop the contraceptive pill.🤔

[Amiwrong in reply to Hidden]

Well, some months there’s nothing and other months there’s spotting. I very rarely have to buy tampons for her. And she says she doesn’t bleed enough from them. I’m pretty sure the bleeding is important and a must to shed that lining, but her GP doesn’t ask about it or seem to be bothered when we mention it 🤔

I wonder if her blood pressure drops at this time too. We haven’t made the correlation. But isn’t it strange for this to happen if you’re not bleeding? I use to bleed heavily and would notice shaking and whatnot from that.

[Hidden in reply to Amiwrong]

Look up symptoms of low blood pressure and get a home monitor to check.

My low blood pressure and hypoglycaemia are not related to my cycle, they happen randomly…even half way through eating a meal. It’s bizarre because I don’t think hypo tension/glycaemia are common in PCOS, usually it’s the opposite!

Does your daughter struggle w managing her weight and insulin resistance?

[AnotherAppointment]

hey, jumping on this thread - I have PCOS and have always had periods, but irregular up until May last year when I was prescribed Metformin for my insulin resistance. I can tell you more about that? I saw you mentioned it above.

I now have regular periods and have lost 2st as my insulin resistance is reversed thanks to the Metformin!

[Hidden in reply to AnotherAppointment]

Hey, thanks for your reply.

I tried metformin but it seems to make my low blood pressure and hypoglycaemia much worse.

I also don’t struggle with my weight and have always had a v low bmi so worry it will make me lose weight