I have had four infusions of Cyclo plus two infusions of mezine to help control my wergeners but each time I have had each infusion I have been very ill indeed feeling dizzy and sick as well as having absolutely no strength whatsoever this last for about four days, I also end up on the loo for number twos about ten times daily. I was put on Azathioprine but had severe reactions to it.So am now running out of options for treatment. Has anyone else had similar problems ? and what did you do. My consultant is absolutely brilliant but is also scratching his head, I was also put on another form of tablets but can't for the life of me remember what they were called these tablets put me in hospital for a week after a very severe reaction.
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