good tip - don't do this!

[hamble99b]

I opened my car door today and somehow managed to hit my forehead then hit it again! I don't know how it happened but it hurts. I presume my arm did its jerky thing TWICE!

sandra.

[JimL]

I am going to tempt fate and say that in my 62 years of life (the last ten as a taxi driver) I have never hit my head getting in or out of a car. Mind you I will now probably do so several times today.

[SandieB]

Sorry but what has this to do with Vasculitis!!!!!!!

[EOS7D in reply to SandieB]

I will at some stage give a better full reply but back in 1997 I suffered many symptoms that crept up on a daily basis the effects thus were not like night and day changes so I soldiered on and ignored them. One problem I had then and and now is continualy bang my head.Vascilitis takes many, many forms and effects many parts of the body. I suffered Cerebral Granulomatous Angitiis a very rare form that effects perhaps 1 in 6 million. I was in hospital for 6 months all but a few days Along the way I encountered many problems. At one stage I was allowed home from hospital but suffered a severe fit whilst a passenger in our car which caused a burst fracture at L4, I lost 2 inches in height, I was re admitted to hopital, I was in and out of fits for 4,5 days. I was re introduced to Chemo and on release from hospital continued Chemo in tablet form for 18 months and the Azothioprine for 4 and a half years.

The problem I have is in remission. The front left node of the brain is not very good, this controls mainly as I understand short term memory and it also affects as I find spelling. The pain I have from the damaged spine is helped by the Gabapanten that I take prevent fits, this drug was first created to help stop nerve pain.

There is so much more to my story but being a recent visitor to HealthUnlocked on the subject of Vascilitis I can identify with so much. To JimL do not suffer bad thoughts, before when I first dropped for the Cerebral form I recall once standing with a pint of beer to be asked why I was pouring it onto the carpet. When I looked at the glass I corrected myself as I could see what I was doing, on seeing a super GP she asked me a few questions, she realised that something was seriously wrong when I just sat there and could not form a reply. She contacted my wife later that evening with details of a hospital appointment for the following day and there I remained for six months.

I have taken up so much space but there is so much more I could say, but I accept all that I have and try to avoid doctors and hopitals there is no magic wand, I consider myself so incredibly fortunate to that being so incredibly ill I had a good GP and, even more to have had a Doctor at the Hospital who had a deep interest in auto immune diseases and saved my life. Going back to 1997 recovery was rare, I shall be 65 at Christmas with two special Grandchildren, life's journey can be painful and it is the only one we get. .

[EOS7D in reply to EOS7D]

2nd line should read "the effects were thus NOT like night and day changes.

[hamble99b Volunteer in reply to EOS7D]

thanks for your reply, I seem to knock some part of me or spill/drop something daily, more through being uncoordinated and unbalanced than being reckless, slapdash or clumsy.

I am thinking about writing another post about my "hesitations" in speech and movement; where for minutes, I lose the ability to do one or both.

I am similarly in debt to my consultant who in 1994 dx'd me with wg/gpa after 2 yeas of getting steadily worse.

my gp and 2 other gp's in the practice have an interest in my condition and follow new info.

never feel you have to limit what you write, we are here to inform, question, support and share.

Grandchildren bring their own joy don't they

regards,

sandra.

[hamble99b Volunteer]

I was sharing something humerous. it isn't always pain & problems.

plus I have these shaking/jerking/ twitching as part of my meds or vascilitis.

regards, sandra.

[mickt in reply to hamble99b]

Me to I shake like a leaf ,ive gca pmr,on 30 pred daily.Ive slowed right down .Its like walking in a shroud of cement ,everything is a effort .I drop things a lot spill stuff also .Its bloody frustrating. Cant work at moment fatigued to much ,and no energy.

[PollyPocket]

I find that some darker humour helps push me through the more irksome side effects of my condition. In fact, it's kinda refreshing to see others adopt the same kind of coping mechanism :)) I hope the rest of your day was accident free, Sandra :)) x

[AndrewT]

Dear Sandra,

Some of DO appreciate your humour and also (I'd be 'in trouble' with my English teacher (and also)) share your 'sort of' humour, I think I would go 'mad' without it!!!!

Take care, keep smiling!!

AndrewT

[hamble99b Volunteer]

thankyou Jim, Polly and Andrew. I must add that I do no it's spelt humorous not as I spelt it, my english teacher would not be pleased! I wouldn't survive without my humour either.

regards,

sandra.

[hamble99b Volunteer]

oops! no = know.

[mandijt]

WG.....i do this regularly! i even trapped my hair whilst getting in the car once....beat that one.......lol! a little bit on humour goes a long way and i did chuckle when i spotted your comment. I'd like to think my mishaps were the wg......however, i have an always be clumsy......haha.

Regards

I

[wooddustaffected]

We have to hold on to the humour, it's what gets us through the darker days and out the other side to the brighter days!

[hamble99b Volunteer]

thankyou, I so need my sense of humour!

regards,

sandra.

[michichgo]

I've hit myself in the face TWICE when picking-up my phone this week and it's only 5 a.m. Tuesday. "OW! Hello?"

[hamble99b Volunteer in reply to michichgo]

Ouch!