Book..Patient: Don't know if anyone here... - Vasculitis UK

Vasculitis UK

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Book..Patient

EGPAGuy profile image
9 Replies

Don't know if anyone here rembers a band back in the day called Every but the Girl. Any how's one half of that group is Ben Watt and he was diagnosed with EGPA back in 1992 and wrote a book about his experience. Its a harrowing read but thought worth mentioning here. I got a copy on amazon and you can probably download it as well. Lev

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EGPAGuy profile image
EGPAGuy
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9 Replies
Investigator1 profile image
Investigator1

Wow “I don’t want to talk about it” was thier big single back in 1982, I will have a look on Amazon. Nick.

juli-pa profile image
juli-pa

I remember the group. Will have a look out for it. Thanks

sarahdollygirl profile image
sarahdollygirl

I remember them well, still listen to them. I think they have a new album coming out..His book was serialised as "book of the week" on radio 4 some time back

MIK65 profile image
MIK65

Thanks, just ordered it. Should be an interesting read.

AndrewT profile image
AndrewT

Dear Lev, I believe, the band, was called 'Everything But The Girl'.

Do you know the Name, of the Book please? (It's much easier to find if you have a 'name', even a partial one.)

Many thanks, for the Heads Up, on this,

AndrewT

EGPAGuy profile image
EGPAGuy in reply to AndrewT

Yeah..sorry the spellchecker removed thing. The book is called Patient

AndrewT profile image
AndrewT in reply to EGPAGuy

I Ordered it, Delivery in a few days, thanks again.

AndrewT

AndrewT profile image
AndrewT in reply to AndrewT

I've Just received, this Book, I will Read it Soon.

AndrewT

Suzi70 profile image
Suzi70AdministratorVasculitis UK

yes, I have read it …I read it about 10 years ago. I am just disappointed he hasn’t helped raise more awareness about EGPA and vasculitis but he decided to just get on with his life as many celebrities do who have been diagnosed with vasculitis.

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