Free prescriptions for Vasculitis Patients - Vasculitis UK

Vasculitis UK

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Free prescriptions for Vasculitis Patients

JacquiM profile image
JacquiMVolunteer
37 Replies

Hello everyone,

I have set up a e-petition for the above. If we get 10,000 signatures it will get a mention in Parliament.

I would be grateful if you sign and share the e-petition as far and wide as possible.

epetitions.direct.gov.uk/pe...

Thank you very much.

Jacqui M :-)

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JacquiM profile image
JacquiM
Volunteer
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37 Replies

I've signed, so has one of my friends. Hope to get more to do so. xx

JacquiM profile image
JacquiMVolunteer in reply to

Thank you :-)

tara88 profile image
tara88

I have signed and shared with Facebook X

JacquiM profile image
JacquiMVolunteer in reply to tara88

Thank you.

hamble99b profile image
hamble99bVolunteer

done :)

JacquiM profile image
JacquiMVolunteer in reply to hamble99b

Thank you

anthony01 profile image
anthony01

Great to have people like you Jacqui. I have put it on my Facebook asking people to sign it and copied the link - will that take them straight there to the e petition?

JacquiM profile image
JacquiMVolunteer in reply to anthony01

It should do Anthony. If you highlight the link then copy and paste the link will work :-)

gilrose profile image
gilrose

Done

JacquiM profile image
JacquiMVolunteer in reply to gilrose

Thank you

Sarahjh2004 profile image
Sarahjh2004

Hi

Is it possible to share this with my friends on fb.....I have loads of them and they are all fighting alongside me.

I have signed

Thanks

JacquiM profile image
JacquiMVolunteer in reply to Sarahjh2004

Yes Sarah. Highlight copy and past should do it :-)

luggsey profile image
luggsey

It's worth mentioning the prepayment scheme that will save you money, a lot of people don't know about it.

I can't paste a link with my phone for some reason but Google prescription prepayment certificates.

JacquiM profile image
JacquiMVolunteer in reply to luggsey

I have a prepay certificate luggsey, as do many others with this disease. With the amount of medication we all have to take (I have 10 items per prescription) it would work out an excessive amount to pay.

My point is that if Diabetics e.g. do not have to pay for their medication why do we?

The link for prepay is nhsbsa.nhs.uk/HealthCosts/2... :-)

in reply to JacquiM

I have 18 items, but as I'm over 60 I get them free anyway, but it's important to support others with this disease by signing the petition. It's on my facebook page too. :-)

JacquiM profile image
JacquiMVolunteer in reply to

Thank you :-)

HiveMind profile image
HiveMind in reply to JacquiM

I'm in the crazy situation of having to pay for my pre-payment card and I take many more meds than my husband, who IS a diabetic and takes two tablets a day!

JacquiM profile image
JacquiMVolunteer in reply to HiveMind

Thank you. That is my point of this petition. How do Diabetics get free medication?

I am going to try and see my MP next week to drive home the point. Every little helps :-)

Kenneth profile image
Kenneth

I have signed. I was diagnosed in 1996. Hope it is a success. It's a lifelong ailment & would save sufferers a fortune.

JacquiM profile image
JacquiMVolunteer in reply to Kenneth

Thank you

shella profile image
shella

great idea well done!

JacquiM profile image
JacquiMVolunteer

Thank you. There are 651 signatures so far so we have a long way to go to get to the required 10,000 so keep sharing with family and friends :-)

HiveMind profile image
HiveMind

Signed and shared.

JacquiM profile image
JacquiMVolunteer in reply to HiveMind

Thank you :-)

Greenkit profile image
Greenkit

Hi i have done this and also put it on a FB group i am in "The Lauren Currie Twilight Foundation - Vasculitis Support Group" and have so far got 10 people to sign.

I found out that people in Scotland dont have to pay it is just England that is so very slow off the mark.

If anyone of you are on FB i advise joining the above group it really is a very friendly group who will answer any question/query you may have.

Good luck with the petition Jacqui XXX

JacquiM profile image
JacquiMVolunteer in reply to Greenkit

Thank you Greenkit. The more groups we are able to share with the more signatures we can get. Share with you family and friends. I know that Scotland (and Wales I think) do not have to pay for their prescriptions but it would be nice to have their support in this :-)

Kentish_Man profile image
Kentish_Man

I have an exemption certificate due to my getting diabetes from taking meds for my Vasculitis (that was never on the packet !! LOL) but I do not believe it is fair that fellow Vasculitis sufferers have to pay. So I have also signed for you/them.

JacquiM profile image
JacquiMVolunteer in reply to Kentish_Man

Thank you :-)

Winter64 profile image
Winter64

Signed and shared

JacquiM profile image
JacquiMVolunteer in reply to Winter64

Thank you :-)

cazg profile image
cazg

Hope we get some positive results. I personally am in the position that I receive free prescriptions because I am over 60 now. When first diagnosed I was afraid that I would be unable to afford the tablets I had been prescribed as I was existing on SSP. Suppose I should think myself lucky now !!!!

JacquiM profile image
JacquiMVolunteer in reply to cazg

Thank you :-)

AndrewT profile image
AndrewT

Dear JaquiM,

Yes this is, very important indeed- I actually get free prescriptions myself, as should we all!

I will, very happily pass this 'chain letter' on-the only one that I ever have, I may add!

I very, very, very (that's a lot of 'very's) strongly urge 'everyone' to do the same please, please, PLEASE!

Thank you for bring this to our attention Jaqui.

Kind regards AndrewT

JacquiM profile image
JacquiMVolunteer in reply to AndrewT

Thank you :-)

JacquiM profile image
JacquiMVolunteer

I have given the link to GhostbustersUK to share with their fans. As you may know, Harold Ramis who acted in the Ghostbusters film sadly passed due to Vasculitis earlier this year.

GhostbustersUK have told us that VUK will be their chosen charity from now on. They have raised a lot of money for VUK so far.

They have now posted my link on their fan page facebook.com/theukgb?fref=ts

so, hopefully, we may get some more signatures :-)

anthony01 profile image
anthony01

Jaqui hope it is doing well. I have had an excellent response by asking my friends to do it on Face Book and they have then put it on theirs, maybe we should ask people to do that as well?

JacquiM profile image
JacquiMVolunteer

Thank you Anthony. I have already done that and I sent it round to all my work colleagues too.

JacquiM :-)

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