Rheumatology patient survey from the University of Cambridge and patient groups

[Hoofprints]

An opportunity to put our point of view forward with a patient survey. All the details are to be found here on the Lupus forum.

healthunlocked.com/lupusuk/...

And here: healthunlocked.com/redirect...

It looks like a valuable study in terms of shaping our care going forwards. It's quite lengthy, but allows you to take a break in between.

Hope you are all coping with the hot weather. 🫰

[May7]

Thanks so much for pointing this out Hoofprints. I did it last night with a break for dinner. It's a long survey, but they explain that you can dip in and out on the same device. It gives us the chance to comment on the effects of our disease, and attitudes to, our resulting mental health as well as clinical treatment. Well worth doing.

[Hoofprints in reply to May7]

You're welcome. Well done for getting through it. It does seem like the study will illuminate l important and neglected aspects of our disease and care from a patient perspective. 🫰🫰