I woke up Friday morning and the vision in my right eye had gone. I have been seeing Consultants in Vascular Clinic, Rheumatology Clinic, Dermatology Clinic and even have went private, even with having all the text book symptoms and 2 positive p-anca blood tests I have no definitive diagnosis. It is so frustrating. I am now on high dose steroids; high aspirin and will soon be switching to anticoagulant medication and now also have been given cholesterol tablets which I now have to take for life. I saw the Stoke Clinic Consultant on Tuesday who organised scans of my neck arteries and they are perfect. I now have CRAO and they tell me my sight in my right eye won’t come back.
What I don’t understand is now I have to go back to the Vascular Clinic consultant who I saw a couple of years ago who told me YES u r a definite text book candidate for vasculitis BUT you don’t look ill!!! No I don’t look ill all the time and I was obviously having a good day when I saw him. I’m female and 61 years old.
Has anyone here had this experience?