LDN sounds too good to be true : Has anyone... - Vasculitis UK

Vasculitis UK

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LDN sounds too good to be true

Cathywp profile image
4 Replies

Has anyone heard of LDN? Maybe it is just a scam from the internet but it sounds like a miracle cure for a bunch of autoimmune disorders plus cancer and autism

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Cathywp profile image
Cathywp
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PMRpro profile image
PMRpro

If it sounds too good to be true - it probably is!

Yes, I have heard of it and it is something that crops up on our forum (PMRGCAUK) a lot. I asked Dr Sarah Mackie about it as it is touted for PMR. She said they have looked into it - and find no evidence at all to suggest it is a magic answer to anything. Personally I have a knee jerk reaction to anything that claims to cure everything - and assume it probably doesn't do anything at all.

I suppose it is possibly worth trying - it is safe enough and used in opiate addiction - but whether it will DO anything is another question.

sciencebasedmedicine.org/lo...

jinasc profile image
jinasc

Developed by Stanford University

med.stanford.edu/pain/snapl...

Looks like a cure-all, now touted for Fibromylagia.

I am not saying it does not work, but it is licensed in the UK for MS only as far as I am aware and I don't know if it works or not.

judyann profile image
judyann

I have had two doctors want me to take it. My pharmacist swears by it. I’m going to try it.

Cathywp profile image
Cathywp in reply to judyann

Well that sounds really interesting. Where can you get it? Do you need a prescription or is it an over the counter drug and if so what is the usual name of it?

I'm excited...thanks

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