Hi all, if I share my experience I'm hoping that others out there have been through similar and can explain what the likely next steps will be.
In early March I went away on holiday and on arrival at the hotel I changed into shorts and noticed a few spots on my legs. Not thinking it was serious I continued withy my day and went out that evening. On return to the hotel late at night I noticed my upper thighs to feet were covered in red blotches/spots. They were not itchy and had I not looked I wouldn't even know they were there. Went to the hospital who completed blood tests and couldn't find anything and wanted to transfer me to another hospital at a cost of 3000 euros. As I felt fine within myself, and that they stated they would not work with my insurance company I discharged myself and a few days later went home - the spots had started to clear up. A week later they returned both on my legs and a few on my chest. So, having been to the GP and referred to a dermatologist 7 weeks later I am still none the wiser other than noticing the dermatologist had written vasculitis with a question mark on some of the sample paperwork. He mentioned referring me for a renal exam and I am awaiting results of the blood test/appointment for the exam.
In this period approx every week I get flare up's which seem to happen in sync i.e. both feet, or both ankles, or both knees along with joint ache and swelling. Strangely the last one affected both my palms with huge bumps in the centre. I have noticed feeling tired and seem to be more ill than before especially with jont/muscle pain.
Just through trawling websites there is so much info out there that I am struggling to come to terms with it - seeing headlines like 'There is no cause - there is no cure' is worrying. Anyway I have to be positive and simply would be interested in other people's experience of the early days of possibly being diagnosed with Vasculitis.