Hello everyone, I was diagnosed with aortitis 1 year ago. It is only now, that I have made a decision to share my experience. It has been difficult to find and share advice about my condition, because it is rare. My type of aortitis is with no known cause, I began to feel abnormally fatigued, with drenching night sweats, feverish episodes an strange chest pain. My gp took some blood tests and these showed abnormal crp levels of 210 (normal value is less than 5), abnormal liver function tests and mild anaemia. To cut a long story short, I spent time in hospital, having a lot of scans, blood tests, iv antibiotics for possible infection etc. 5 weeks later, I had a PET scan which showed an inflammed aorta. That was December last year. I have been on prednisolone, which I am currently tapering down, because I am now taking mycophenolate. My crp levels have come down dramatically but not normal yet. They are fluctuating between 15-19. Noone can tell me why they havnt returned to normal. I am better as far as my blood tests go, but I still feel fatigued, I am overweight as a result of taking steroids and I feel generally weakened. I don't think that I will ever be as robust as I was previously, but at least I am still alive. I have blood monitering done every month and I see a rheumatology nurse specialist every 2 months. I would be interested to hear from anyone who has this condition, and how they have coped with it.