I usually post on the PMR/GCA site as that's what I have. [ 16 years ] However you may recall me posting on here last year Re also having symptoms of WG, but all tests were negative, I was on around 25gs Pred at the time so that probably didn't help with the test results ? Since then I reduced my dose and got to 10mgs. a few weeks ago, and things seemed better. However after being on 10 mgs for a couple of weeks I started to have a flare with really bad headache, lethargy, sore nose, bleeding sinus, [not heavy just spotting,] and a hoarse throat, and generally feel unwell, [ last month my ESR 21 CRP 11] so not too high, Now was/is this WG or my GCA or both ?
I reported this to my Dr as I wanted it to go on my file. I cant see that he would send me for tests again so soon, especially as it was only 6 months since I had them, and all negative, so I didn't even ask for that same reason, I am now back on 30 mgs Pred. I have had another blood test [ ESR/CRP ] and waiting for the results of that. I feel like I'm losing the plot and even shed a tear in the surgery, not usually like me as I have a good sense of humour.
Thanks for listening