Is there a support group in Suffolk, if not is anyone interested?

[valwood]

[PatriciaAnn]

My geography of your part of the country isn't great, but I think the nearest one might be the Cambridge group. Take a look at the website that gives details of all the groups and contact persons. vasculitis.org.uk/about/fin...

[Suzym2u Moderator Vasculitis UK]

I also think the Essex support group might be near too

[suffolkgirl]

Where in Suffolk are you? I live in Suffolk. I've been to the Cambridge group, and I'm treated at Addenbrooke's.

[valwood in reply to suffolkgirl]

I live in Woodbridge and am treated at Ipswich hospital. I don't fancy travelling to Cambridge, would you be interested in a Suffolk group.

[Essex-jill]

I live in Suffolk now and I am also treated at Addenbrookes.

I used to help run the Essex Support Group which started over 15 years ago but disbanded a few years back. It was called The William Godfrey Vasculitis Support Group. It was invaluable to me when I was first diagnosed.

[valwood in reply to Essex-jill]

Your knowledge and expertise would be invaluable if we started up a group. Where about in Suffolk are you?

[suffolkgirl]

valwood, I live over in the west of the county, near Bury St Edmunds, so travel to Cambridge is not such a problem. I would be interested in a Suffolk group, but I'm not really keen on organising it.

I'm sorry Essex-jill we haven't arranged any get together. Although we have family in Ipswich, we don't get there very often. When are you next at Addenbrooke's?. I'm going to clinic on 4th October.

[Essex-jill]

Hi I'm next at Addenbrookes on 25th October, but don't worry we will meet up sometime . X

I live in Shotley Gate., just outside Ipswich. Only moved here in March, so new to the area. Could always meet you for a coffee and chat. When were you diagnosed and what kind of Vasculitis do you have ? X

[valwood in reply to Essex-jill]

Shotley Gate only about 30 mins drive away. I would love to meet up sometime. I have Wegners & was diagnosed in January of this year.

[Essex-jill in reply to valwood]

That would be good to meet up. Do you want to private message me so we can arrange this Valwood ? X

[alybill]

Hi, I am due to move to Hadleigh in Suffolk around December ish I also attend Addenbrooks and My next visit is 4 th Oct 10.40. I have CSS Churg Strauss Syndrome and had it for 4 years.

[valwood in reply to alybill]

Let us know when you move here. I would love to meet up with you.

[suffolkgirl in reply to alybill]

My appointment time is 8.45, but maybe I'll still be around!

[alybill]

Don't wait around for me, perhaps we will meet up if we establish a local group.

[Mooka]

Hi everyone I live in Norfolk and would be happy to travel to Suffolk to meet up. Jackie

[valwood in reply to Mooka]

It looks as though we might have enough people interested in forming a small group, watch this space.

[Suzym2u Moderator Vasculitis UK in reply to valwood]

If you would like any help, information leaflets anything really please let us know. vasculitis.org.uk/about/sta...

[RichardE Volunteer in reply to valwood]

I have family connections in Suffolk (was actually brought up in Hadleigh) so I'm often down that way. I'd be happy to come along and talk / help if you get a meeting organised. Private message or email me at [e-mail] if you want a hand.

[alan-lee]

Hi all, I also have Addenbrookes on the 4th October 9am then at 10am rituximab infusion. I have WG vasculitis does anyone know when the next Cambridge support group is and where? I live in Norfolk so think that group is my nearest