Liverpool/cheshire support group meeting

[quinnster]

Just a reminder,the first meeting,will take place on thursday 12th july at 3 30 pm.

venue is royal liverpool hospital ward 11c

all welcome

[John_Mills Volunteer]

Hope it goes well Keith!!

[Jann]

See you there

[Griff53]

Will be there

[Shannan]

could you please let me know when the next meeting is, as i have just been told i have systemic vasculitis diagnosis seems to be i am one of those who bridge different types still only new to this so any help would be very appreciated .

kind regards steve

[quinnster]

will do hoping to be october/november

[John_Mills Volunteer in reply to quinnster]

will you let us know the date too and hopefully we can make this time

[quinnster]

of course

[quinnster]

of course

[Shannan]

Thanks, do you think it would be to my advantage to try to see Dr harper at the royal liverpool for a consultation as i don't want to ruffle any feathers with the doctors at aintree hospital although Dr harper does seem to be a lot more informed .

[hamble99b Volunteer in reply to Shannan]

just seen your post. who do you see at aintree? did you see dr harper?

sandra.

[Hidden]

Sorry to butt in. I would be interested in Rheumatoloigst in this sort of area, Cheshire, Liverpool etc.

Local info re. specialists would be most helpful.

I'm also slightly confused if temporal arteritis is considered as vasculitis. It looks like different Rheumatologists have their narrow interest in certain disease but not others etc. This makes it essential to know which specialists cover which type(s)......

[Suzym2u Moderator Vasculitis UK in reply to Hidden]

Dr Janice Harper is at Liverpool. In fact it was only a few weeks ago she organised a Vasculitis Masterclass at Warrington discussing large vessel Vasculitis. Takayasu's Arteritis and Giant Cell Arteritis (Temporal Arteritis). It was attended by 50 people most of them doctors. Some doctors do specialise in certain types of Vasculitis such as ANCA Vasculitis but some Doctors cover many different types. I think Dr Harper has patients with different types of Vasculitis.

hope this is helpful

Susan

[poppy1964 in reply to Suzym2u]

do you have to be refered to these doctors where i live we only have one rhumy and i am afraid to say he dosnt know a lot about vasculitus i have been left at moment nearly 2 weeks without any meds i was on azas but they didnt agree with me anyway to cut a long story short he still hasnt got back to me and im in so much pain can hardly walk

[churglpool]

when is the next vasculitis meeting I am from liverpool but live in warrington?