Ok had the appointment with my GP this morning to say that I wasnt happy about lowering the dose of Eltroxin from 1000 mcg to 75 mcg.
I have been to see him so many times in the last few months since he became my new GP 6 months ago he must dread reading my name on his screen.
I thought ok today I'm going to tell him exactly how bad I feel everyday when I wake up because this can't go on ... I wake up every morning wishing I could just stay asleep indefinately because I tremble, shake and feel nauseus , some morning I get dizzy when I get out of bed and fall sideways .
I told him I was concerned with the following and could all these issues be related to my thyroid because I had now read the leaflet in the packet of tabs and researched on line and they all come associated with thyroid problems, he said he didnt think they were .
He thought my weight gain from 53kg to 70 kg over the last 13yrs was partly because I was no longer working for the last 5yrs ..... he thought the hair loss was due to stress, my skin condition which was diagnosed by biopsy as Lichan Planus was due to stress ... my memory loss was caused by stress ... the pains in the muscles and bones in my legs and pelvis he thought were all from the hip Bursitis not thyroid related ( although last week the physiotherapist said she was concerned about the extent of the pain and tenderness as she didnt think it was all bursitis related ). ?
I am so cold all the time that going out in the cold makes me feel ill and I get really stiff.
And for the last 4 weeks my upper eyelids have been swollen especially on the inside corner, I can see it hanging over my eyes.
I sound like I need putting down don't I .... I'm really worried as to what could be wrong with me if my thyroid results are ok ?
He started looking through his little book and was wondering if he should try some T3 lio something it was called.
So I plucked up the courage to say look this has been going on for 12 years and I'm just too tired to do this anymore there must be something wrong with me as the previous years to this I felt really well so can I please go to see an Endocrinolgist he said '' thats a good idea because I'm floudering a bit as I'm no expert with thyroid issues. ''
I also got some copies of my blood results. ( had to pay but didnt mind )
In 1999 I was given a different brand of levothyroxin ... in 2000 I went and told them I didnt feel right so they reluctantly gave me back my previous levothyroxin and still I didnt feel right ( didnt realise at the time it was a different manufacturer ) .. in 2002 my memory started to get quite bad and I mentioned this to GP because at this time she also just stopped the HRT I had been taking for 30 years .. I was told I no longer needed it at my age ( 52 ) so I had to go cold turkey .... the pharmacy asked why it wasn't on my script so I told them , they couldnt believe she had just stopped the high dose of HRT I was on they said it was the equivalant of expecting someone on heroin to go cold turkey.
Anyway months later back I went again about my memory , fogginess , clumsiness etc; and asked if it was HRT related and she said it had nothing to do with the HRT but agreed to give me back half the dose.
But everything was still going pear shaped ... over the following 4 years I saw three different dermotologists because my skin had got so bad all over my body.
I eventually had a biopsy and was diagnosed with Lichan Planus although the dermatologist said he had never seen lichan planus that looked like that before ???? and today I still have to wash etc; with Dermol.
My memory carried on getting worse and so did I physically and mentally
I couldnt remember what you told me to write down here so I wrote it as I read it
Abn value units Range status
Serum free T4 level Y 22.1 pmol/L ( 9-24 U ) nk
Serum TSH level LO 0.02 mul ( 0.2-4.5 U ) nk
Serum free 4.3 pmol/L ( 2.5- 5.7 U ) nksti
Serum free T4 LO 19.7 .. .. ( 9-24 U ) nk
Serum TSH LO < 0.02 mu/L ( 0.2-4.5 ) nk
Serum free T4 Y 20.7 pmol /L ( 9-24 U ) nk
Serum TSH LO < 0.02 mu/L ( 0.2-4.5 U ) nk
I dont know what tests he asked for that the lab said were too expensive
I have the blood counts, magnesium etc; too if you tell me which of the numbers under the heading abn, value , units etc; is the one you really need to see I'll add those too. xx