I am planning to see Dr P.

I am planning to see Dr P. I am really lost and I am feeling so unwell that really I need to find somebody who would listen to me, to look at my blood tests and to guide me. I need reassurance and answers to my thyroid treatment related questions as well as to receive help with treatment complications.

I am not expecting miracles just simply a guidance....

I have tried multiple times to contact my current private Dr. (I don't need to mention names) to get some support and answers to my questions, I did not get any, instead I was given more sarcasm and told that life is miserable and really what do I want.... I can't take it, this is not the way it should be.

After today's conversation I really felt that is cruel to treat a patient in such manner.

and just to be left hanging in the air and to wait until I become really sick. I did book another appointment with this Dr. but I do not think that it is worth it to pay the money that comes so hard to get in my circumstances.

I have heard a lot of good words about Dr P, I know he cannot prescribe but I hope that he will listen and wont fob me off. I hope he will look at my blood tests and listen to the problems I have experienced with taking ERFA and as Dr P takes a holistic approach I hope he will tell me more about what to do about my GI and other hormone problems.

I do not know when I will be able to see him.

My friend phoned today, and spoke to Dr P however lady who deals with appointments bookings wasn't there, so Dr P took contact details and promised that somebody will contact me on Monday in regards to appointment date.

I am hoping not to get disappointed as I am really trying hard to hang in there but I feel too much on my own with all my thyroid problems.

I feel like I i'm self medicating because I cannot get medical body to tell me when and how much I should increase?? I am just assuming and trying on my own.

Thank you everyone on this forum for giving me lots of good advice and warm words of support I really appreciate it so much.

I really feel something is going wrong and I do not know what? My temperature should not drop soon after I take my Erfa?? that is weird, but I was told by Dr... not to check temperature at all?? That does not to seem to be a good advice at all.

I know that Dr P wants patients to monitor their temperatures and blood pressure so I am trying to do so..

I never felt so terrified in my life and left on my own just to deal with my illness.

[post edited slightly by admin in line with the guidelines]

[shaws Administrator]

I hope your visit to Dr P is successful.

[Hidden in reply to shaws]

Thank you Shaws. I cannot wait to see him. E xx

[Clarebear]

I saw Dr P and he was lovely - very charming and courteous. He is very knowledgeable and understands female hormone issues too. Good luck x

[Hidden in reply to Clarebear]

Thank you Clare. I am hoping to see Dr P soon, I also hope that he will help me.

E xx

[merissa in reply to Hidden]

Hi I went to see Dr P, he is lovely, however my mistake i didnt follow his protocol, not because I didnt want too, I left all my documents in a hotel I stayed in and was never found. I felt i couldnt afford suggested test till later on in the year, nothing to expensive but vey accurate.

Dr P will listen to you, he has a lovely calm approach, have you got any blood test done? have you been diagnosed with any thyroid issues? what about deficiences? this will all help?

I do hear you though, you sound really deperate frustrated, I think what you need is someone to break everything down for you? why dont you find out whats causing you issues first? like b12 gut, iron/ ferratin/ antibodies/ choletrol, then you can be armed, or have you already done this?

Dr P will explain some of your issues and test to order if nessassary, then work on one thing at a time.

Your terror and anxiety will compound your issues and you will panic even more, your thought process is not helping and anxiety because of your illness, its a vicious circle.

go and see him, at least he will help and monitor you, ignore the other doctors if they are making you stressed and treating you with scant disregard.

Try not to predict what might happen as it may never happen.

good luck with Dr P, he will listen to you, I did hug him when I was there, lol.

Merissa xx

[Hidden in reply to merissa]

Hi Merissa

Thank You for your reply.

I am diagnosed and I am taking Erfa NDT ( 1 and 1/4 of a grain at the moment), I have blood tests from December 2012, not joy with obtaining new ones so far. I had vitamin deficiencies but I am correcting them with supplements.

I am trying not to get too anxious but my temperature is dropping really badly, I feel freezing cold despite taking NDT.

I just have to rely on my fate, I get nowhere with my doctor.

If my temperature will be around 34C then I will call an ambulance, that is my plan.

I hope that something will save me.

I am glad to hear that dr P is warm and kind, I really need to feel that I can trust somebody. Listening and gentle approach will help me I am sure. I hope that it will go well, whenever I will have a chance to see him.

Hugs are good.

Lots of love to you Merissa.

E xx

[merissa in reply to Hidden]

Temp drop low is not good, not that low anyway, mine has dropped to 35 but now can fluctuate. why dont you stop takin NDT if its not helping, if you feel worse on this product, then surely it isnt working.

Take deep breaths and distract yourself, put a elastic band on you wrist and when you feel anxious ping it, this will distract your anxious thoughts.

your panicking and you need to try and stay calm. I agree if your temp gets to 34 then consider and nhs direct for advice.

Im up for a while so pm me if you need to chat.

xx

[Hidden in reply to merissa]

Hi again Merissa

I am on NDT only just over a month so I have to give it a longer time.. I did not try any other meds really.

I will do the trick with elastic band, I have been advised that before. It might even raise my temperature :)!

I will PM if I am still around on the forum

E xx

[macangel]

Hang on in there, I know it's a rough road, but there is hope.

I've seen Dr P.and he was very helpful and I got on well with his suggested treatment. I've had to repeat the adrenal support twice since then, and it does help. I know things aren't perfect with my adrenal - thyroid state, but it is so so much better than if I had just been left to the treatment the NHS dishes out. So I do wish you all the very best xx

[Hidden]

I have seen Dr P and he is very kind and helpful. I was feeling truly awful, really sick and at the time extremely angry with the fob-off I had received from various doctors, but anger only makes one feel worse because it stresses the adrenals. I remember you were going to see Dr P to begin with and then changed your mind and went elsewhere. I was dismayed on your behalf because I thought Dr P's approach was more suitable for you. He has a holistic approach and knows about female hormone and the right vitamins and nutrients to take. I had a talk of about one and a quarter hours with him. You will need to stick to his protocol. Dealing with hypothyroidism on your own is very frightening, but you can always talk to us and you have your boyfriend who is on your side. The horrible symptoms are mostly much less threatening than they feel. Dr P can only tell you what he knows works for lots of people and he will probably be able to identify what is going on with you. I have got better following his protocol. it takes a long time to get better with this disease. Just take things one day at a time.

xx

[Heloise]

I'm very annoyed at whomever spoke to you that way. Life is miserable????? Yeah, when you can't get treatment for an illness. Ask her if that isn't what her job is about. Is she collecting a paycheck? If her job is to tell people they must remain miserable, we can probably find people who can do that for FREE. Oh my, I do get fired up. It's not right, Edysia, and somehow these people have to find that out.

I'm thinking that something is keeping your NDT, especially the T3, from working and turning into reverse T3 instead which blocks ordinary T3 receptors.

Tissue resistance to thyroid hormone is just what it says it is, there are normal amounts of Free T3 in the blood and yet the body behaves as though it's hypothyroid. This is often caused be Reverse T3 blocking the Receptors on the cells that the T3 should stimulate.

There are causes of this other than RT3 but treating resistant hypothyroid people with Natural Thyroid (Armour Etc) or synthetic T4 leads to large doses being given. This leads to excess levels of Free T4 and that in turn leads to RT3 being produced and resistance building up. The only successful way I have heard of to treat people with other resistance is to use T3 only. I have some other form of resistance as well and had to increase my Armour dose every year until I was up at 12 grains. On T3 I have been on a constant dose for 6 months now, I am stable at last. (updated 10/10)

YOUR FERRITIN AND CORTISOL LEVELS MUST BE GOOD BEFORE STARTING ON T3 ONLY.

Perhaps Dr. P will try to build up both of the above and rid you of too much T4 and RT3 being stored if this theory is correct.