Just joined here the other day. So great to find a UK based group where people are discussing their thyroid issues! I go on a lot of US ones, but find they don't always understand the UK struggles, though they are very informative in other ways.
I have been hypothyroid for 17 yrs on T4 only and diagnosed with ME/CFS around 5 yrs ago. To be honest, until last year it never occurred to me to explore the possible thyroid connection, as like many, my blood tests on T4 almost always came out well.
However I managed to get my GP to send me to a sympathetic endo in Dec who let me try T4/T3, but I felt a lot worse from day 1 and stopped after 6 weeks. This was before I had read of Paul Robinson's book on trying the circadian rhythm method for T3 though.
Now I am trying T3 only though my endo has discharged me to my GP, who knows very little on this subject. I have been using Paul's book and the internet to help me. I am on Week 3, but so far have developed a lot of worse stomach issues. I have developed severe food intolerances anyway in the last few years and wondering if the lactose in T3 is doing it for me, or other fillers? However I didn't have this severity on the T3/T4 combo so it seems unlikely.
I don't want to give this up too quickly as I doubt I will get another try at it, but wondering if I would have the same issues on NDT if I tried that next. And does T4 also have lactose in it I wonder anyway? (just looked this up, and it seems it does!) I did have stomach issues on T4 but have helped them a lot with using Betaine HCL, but this is different I feel. I am already gluten free/dairy free/soya free/processed food free etc etc.......