I thank everyone on this sight for for there help and support and most of all there empathy.
I only joined this forum a few weeks ago, I have learnt so much, and received such valuable information and support, to follow a brief outline, I have promised to do a full case storey later, when I am feeling better.
2008 aged 48 I presented my self at the local hospital's A&E in desperation for an answer to my dreadful symptoms. This was the start of my heinous treatment for this dehabilitating illness and my five year battle to receive the correct treatment and diagnosis for my chronic illness. A basic human right!!!!!
The start of my nightmare .......
I was sectioned under the MHA section 2(this meant I could be held for 28 days against my will) I was dragged out of the hospital by two policemen and taken to the local mental hospital to a secure wing! I was transferred the next day to a private clinic, as I was fortunate enough to have private medical insurance. After a 10 minute interview with a Phychatrist I was diagnosed with Bipolar 1 and forced to take Antiphycotic medication(they informed me if I did not they would place under a stronger section for six months a total no win situation. I knew I was not Bipolar ! Days later after many medical exams I was diagnosed with Graves Disease and the wonder Endo who diagnosed me informed me I should be on a surgical ward not a mental ward. An answer at last. The Phychatrist refused to back down from his wrong diagnosis(now proven) I had no previous history of Mental illness. I do believe I had thyroid trouble from birth or childhood due to my extensive research I have done for example late puberty age 17, my body size through my life from a size 6 to a size 24 with no dietary changes at least 12 heartbreaking miscarriages.My arms ached to hold a baby of my own.
I was forced to carry on taking Antipsychotic Medication and my thyroid was treated by block and replace until the end of 2011 and I also proved I had been misdiagnosed Bipolar and taken off all Antipsychotic medication too. If anybody should dare too tell you there is no stigma to Mental Health in this country they are liars!
This disease and misdiagnosis of Bipolar has cost me dear!!
My beloved husband and partner of 30 years walked out on me in 2010 taking my most wonderful and much loved young children with him and served me with divorce papers sighting Bipolar and unreasonable behaviour as cause, and wanted full custody of our much wanted and wonderful children. We are now very sadly divorced, but I put up a strong and hard fight battling against the misdiagnosis of Bipolar and the right to have at least 50% custody of my cherished children. I won this right, but the cost was huge!!!! Not only financially (over £100.000) I was fortunate to have been a successful businesswoman. The cost to my health was devastating my body went into complete and utter meltdown the chronic pain and lack of sleep and my appearance was hideous, my darling children did not want to be with me. With the passing of time and sharing my experiences with you my fellow sufferers I can share my dreadful experiences and symptoms about the aspects with a bit more nuance, instead of being over emotional by my own personal experience, and by telling of my own horrific personal experience, I do not want this to happen to anyone else. How did I expect my ex to understand this chronic disease when the Medical professionals did not either who are much more educated than him. One of the marriage vows "in sickness and in health" chose to believe the mental diagnoses given by the private clinic used by the rich and famous. My TSH level was fine, I was not,give me the respect of knowing my own body! It's all in my mind!!!!!
On the 15th of February 2013 I tried to see my GP my symptoms were worsening it took till the 20th to see my GP I was rushed to hospital via ambulance in AF and admitted to the coronary ward ( I was too terrified to go to A&E by my self for the fear of being sectioned again. Imagine my horror when a Endo appeared at my bedside(I had been a private patient of his in 2008 until I stormed out of his office in 2009 in sheer frustration tearing up my notes as I stormed out after he kept telling me TSH level was fine)he did not regonise me due to the huge physical transformation of my body. It's a wonder I did not have a heart attack there and then!!!! I asked him what my TSH level was he informed me 6 I relied that's not normal. He argued back that it was!! I asked was there any chance of having Free T3 and Free T4 tested he replied no need as my TSH was normal. He wanted to do a further blood test which would be able to detect if I had a clot! depending on result I could probably be discharged later and see him in month. Hell would have to freeze over for that to happen!!!!! I argued that as he was taking blood anyhow would he not to it to ease my anxiety I even offered to pay I appealed to his junior doctor and asked what harm it would do, I was to scared to make a big fuss for fear of being sectioned again. My Endo stood at the end of my bed, he made no physical examination on my right neck was a lump probably a Goitre which my own research has proved is the result of too much T4, he walked off. I bust into tears, the nurse on the ward questioned why I the nerve to argue with an expert she too walked away. After a while his junior doctor came to tell me the test proved it was highly probable I had a clot and they were going to send me for a CAT SCAN I was devastated, I asked had the test I requested been done, he assured me it had but no results yet.
Later the heart doctor appeared at my bedside with five other doctors, I thought I must my dying to warrant such medical attention!!! He informed me I was correct my levels where vey high. At last an answer five years later
Free T4 of 54.4
Free T3 of 36.2
Troponin T less than 0.03
If I were physically able I would do a cartwheel.
If any one wants to ask a question or send me a private message, I will reply when I can. Thanks to your replies re my much loved brother and his Fibromyalgia, he is know going to have the correct thyroid function test(his long term partner left him too, saying it was in his mind)
Updates to follow. you have shown me more empathy than my own family and friends.